Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 09-29-2012, 03:18 PM #17
hajile99 hajile99 is offline
Junior Member
 
Join Date: Aug 2012
Location: Las Vegas, Nevada
Posts: 70
10 yr Member
hajile99 hajile99 is offline
Junior Member
 
Join Date: Aug 2012
Location: Las Vegas, Nevada
Posts: 70
10 yr Member
Default

Quote:
Originally Posted by alice md View Post
We can't blame neurologists for being content with the way things are, when we as patients who receive such treatment are content with it.
I think this is probably the key to everything you just discussed, Alice. As patients dealing with MG, as in any other disease, we are our best advocates. Simply being content with the existing treatment options and the lack of research done on MG does nothing but perpetuate and exacerbate the struggles we go through on a day-to-day basis. Not only do we, as patients, have to be our own advocates, but we need to create a greater awareness to the disease in order to further interest in the study of it.

I guess the real question, is how do you go about creating awareness? And how do you translate that awareness into further research and study of the disease?
hajile99 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
alice md (09-29-2012)
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Any math geeks? Blessings2You The Stumble Inn 2 12-02-2010 12:22 PM
Math Yellowfever Attention Deficit Disorder 2 01-22-2009 06:36 PM
Beauty of Math Darlene Sanctuary for Spiritual Support 2 11-06-2007 10:32 AM


All times are GMT -5. The time now is 07:23 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.