Quote:
Originally Posted by StephC
I think if somehow the un-diagnosed (those who just deal with without complaining or who after complaining a few times were told it was nothing)
Stephanie
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Please don´t forget to add the
last members to your undiagnosed group!
In other words, those like me who are undiagnosed, and
never stop complaining
Quote:
Originally Posted by RavenC
But what's your idea, to make a movie like CFS patients did?
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If I were in the business I would have made a movie about Alice´s life and work if she let me, as well as a more formal documentary.
Goodness knows there is more than enough interesting material just looking at one weeks worth of posts on this forum. There you have it!!
Yes it will take generations to change things with research alone but maybe only
one generation with research and a film!
http://en.wikipedia.org/wiki/Rain_Man
No one is laughing at autism because of Rainman. I personally learned respect for differences here.
Adding the human element to a disease like this you increase interest and
if the director and script writer are skilled at what they do then beginning awareness is just a natural effortless by-product.
http://en.wikipedia.org/wiki/As_Good_as_It_Gets
I remember being incredibly impressed with the tactful approach of the film maker and empathy and understanding for compulsive disorders.
Quote:
Originally Posted by alice md
I believe that at least some ME patients have MG with normal "objective" tests.
I wonder if your ME was not the early stages of MG?
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Maybe!
I now no longer have the ME symptoms that I had a few years ago. The myasthenic symptoms overlapped with the chronic fatigue symptoms and then eventually separated. In other words I am left with only fatigable weakness symptoms in certain sets of muscles.
So just for an example, if I need to lay down during the day on the floor of my office it is not due to severe fatigue of body and brain but very specifically the trunk muscles that have reached their myasthenic collapsing point, I am no longer able to stand or sit and need just a minute or two of rest and then I am´fine´again.
What was the worst was not knowing if the constant paralyzing brain fog would ever lift. At one point it took me half an hour to make a sandwich and wrap it up because my brain could not process that much information.
I don´t think my brain is in too bad of a shape lately
– all things taken into consideration
And anyway guess what started all of that in the first place?............
A VIRUS
!!!!