Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

 
 
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Old 09-29-2012, 02:24 PM #6
StephC StephC is offline
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Join Date: Jul 2012
Location: Fort Lauderdale, FL
Posts: 286
10 yr Member
StephC StephC is offline
Member
 
Join Date: Jul 2012
Location: Fort Lauderdale, FL
Posts: 286
10 yr Member
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I think if somehow the un-diagnosed (those who just deal with without complaining or who after complaining a few times were told it was nothing) and the mis-diagnosed (those who are told it is in their head and directed to seeek mental health treatment) could be identified and included in the patient group then MG patients wold be a more significant or relevant subject of study and create more interest? I happen to think combined total of mis- and un-diagnosed maybe twice the 1/3 number above. Not easy to identify and include (guess that starts with higher awareness) but these people do exist and if including them means doubling or tripling the target population, then I think worthy cause.


Perhaps also consider including the undiagnosed/misdiagnosed for all neuro-related illnesses (which just since the end of July I have personlly known at least 3 other professionals with serious neuro related illnesses struggling with similar types of issues as MG patients on here regarding the diagnosis/treatment). It seems to be trending towards more rather than less.

I am just brainstorming but I have said before I think the members of this forum are very intellegent and we are very fortunate that MG does not affect our cognitive abilities. As such I think we have the ability (and most on here already have via their many wise and thoughtful posts)to positively contribute to improving on the negatives of the situation.

and with that I hope everyone has a strong, comfortable Saturday evening :-) on a lighter note if you havent seen Bourne Legacy it has interesting neuro subplot and although not as good as the others was worth watching.

Stephanie

Last edited by StephC; 09-29-2012 at 02:27 PM. Reason: cut and paste wrong
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