Quote:
Originally Posted by tkrik
Anya - Yesterday, the nystagmus came back again. I've only gotten a 2 day reprieve from it. UGH! So this morning I googled nystagmus in MS and found this article. I thought of you and decided to share this link. I can certainly share some of your frustration. For me though, it is only eye pain and a jittery eye that affects my vision but it has been going on since the end of December. Based on this article, it appears that what I am experiencing is saccadic intrusions which, from what I gather from the article, these are not caused by the optic nerve but a lesion in the brainstem or cerebellum, which I do have. I thought it interesting because we always associate eye trouble in MS as being an optic nerve issue but, based on this article, that doesn't seem to always be the case.
http://www.msfocus.org/article-detai...?articleID=382 |
Thank you so very much for sharing that article!
Super awesome, educating read that was
And im so sorry that you have to deal with nystagmus again, its definitely the opposite of fun
I was contacted today by the catch program and they have found me an ms specialist! Hooray!!! Now in order to schedule yhe appt. My pcp has to sign that freaking referral! Why is this man refusing for me to get help?
Also, more good news..
I have an appt with an opthamologist on the 22nd, another hooray!
And thanks again tkirk, I will now be able to talk to these doctors about all of my issues using proper terminology!
You all are just a blessing to me!
Thanks for all the support and information!!!
