Anya - Yesterday, the nystagmus came back again. I've only gotten a 2 day reprieve from it. UGH! So this morning I googled nystagmus in MS and found this article. I thought of you and decided to share this link. I can certainly share some of your frustration. For me though, it is only eye pain and a jittery eye that affects my vision but it has been going on since the end of December. Based on this article, it appears that what I am experiencing is saccadic intrusions which, from what I gather from the article, these are not caused by the optic nerve but a lesion in the brainstem or cerebellum, which I do have. I thought it interesting because we always associate eye trouble in MS as being an optic nerve issue but, based on this article, that doesn't seem to always be the case.

http://www.msfocus.org/article-detai...?articleID=382

Thank you so very much for sharing that article!
Super awesome, educating read that was
And im so sorry that you have to deal with nystagmus again, its definitely the opposite of fun
I was contacted today by the catch program and they have found me an ms specialist! Hooray!!! Now in order to schedule yhe appt. My pcp has to sign that freaking referral! Why is this man refusing for me to get help?
Also, more good news..
I have an appt with an opthamologist on the 22nd, another hooray!
And thanks again tkirk, I will now be able to talk to these doctors about all of my issues using proper terminology!
You all are just a blessing to me!
Thanks for all the support and information!!!

It's not fun at all. It's so annoying. I'm going to try ice on it and see what happens. It certainly can't hurt any. I'll let you know how it goes.

AWESOME!!! I'm glad they helped you find an MS dr. As for the PCP, maybe he has the "Almighty God" complex and feels he can handle it. To me that doesn't make sense. You could always tell him that you want the referral for continuity of care and can't understand why he is refusing you that. Use the words continuity of care. Trust me, that means a lot in the healthcare industry. No one wants to interfer with continuity of care. That would be a very bad thing.

I'm glad the articles were helpful to you. They were to me too. The one today made me call the neuro. I just want to rip my right eye out but I know that if I did I would end up in the psych ward for doing so.

Good luck! Definitely update us on what is going on and how you are doing.

Update - Ice was NOT the answer. It made things worse in regards to my vision. I think I froze my eyeball. It actually made it hurt more. So, I wouldn't recommend doing this.

Ahhh ohhh no!!!
Frozen eyeball cannot possible be good! Im glad you let me know as I have been contemplating putting a cube on thr left one for relief.. I shall not try this method! Hang in there! We're in this together!

Cool damp washcloths might help, sometimes even warm damp washcloths might help but yeah, it's not a good idea to put an ice cube on your eyeball.

Erin - I didn't put an ice cube on my eyeball. I used an ice pack wrapped in a towel. It was still too cold. I'll have to try a warm cloth and see what happens.

How are you doing Anya? Are your eyes any better?