Member
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Join Date: Aug 2009
Posts: 642
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Member
Join Date: Aug 2009
Posts: 642
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Hi Interested,
Sorry your son is having a tough time. I would, however, suggest that he make the time to learn about the disease and how to manage it himself. There is a learning curve that only he can navigate and saying that he doesn't have time or energy to research the disease that's affecting him is akin to treading on thin ice. MG is the sort of thing that WILL get its way, one way or another.
There is no special diet or formula that will make the symptoms less or prevent the fatigue. You son is recovering from surgery and has MG so it is reasonable that he cannot do what he is used to or would like to do. Sadly, that's the nature of the beast.
We've all had to make life adjustments, and they aren't always pretty, and definitely nothing that any of us wanted or want. It takes time to adapt and to treat the disease. One thing I would question is the twice daily dosage of prednisone. Taking prednisone later than 8 in the morning contributes to insomnia and other side effects and generally isn't done. Your son might want to double check those instructions. Once a day, early morning dosing is the general rule.
Hope this helps, and doesn't sound too harsh. Good luck.
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