Hi Interested,

Sorry your son is having a tough time. I would, however, suggest that he make the time to learn about the disease and how to manage it himself. There is a learning curve that only he can navigate and saying that he doesn't have time or energy to research the disease that's affecting him is akin to treading on thin ice. MG is the sort of thing that WILL get its way, one way or another.

There is no special diet or formula that will make the symptoms less or prevent the fatigue. You son is recovering from surgery and has MG so it is reasonable that he cannot do what he is used to or would like to do. Sadly, that's the nature of the beast.

We've all had to make life adjustments, and they aren't always pretty, and definitely nothing that any of us wanted or want. It takes time to adapt and to treat the disease. One thing I would question is the twice daily dosage of prednisone. Taking prednisone later than 8 in the morning contributes to insomnia and other side effects and generally isn't done. Your son might want to double check those instructions. Once a day, early morning dosing is the general rule.

Hope this helps, and doesn't sound too harsh. Good luck.

Thanks 4 eyes for the prednisone info. Guess I need to clarify that my son does research to learn info about his illness, and just got in touch with someone this morning who was able to share info about a doctor near our area that specializes in MG and sees MG patients daily. We are so thankful for this information. Our son is very active pursuing knowledge about MG. He just doesn't have time to get on the support group sites at this time. Since I do have time and am also interested in learning more, it is easier for me to do this part. In addition, his sweet wife along with his sisters also help look up information. It appears that you can never have too many family members learning about this disease and supporting you and supporting themselves.

Oh, thank you for clarifying. That is good that he has the support! The way the first post read made it seem like he might have been ignoring or not dealing with the issues out of denial or something (which would also be perfectly within the "norms" of the adjustment process.)

I hope the new doctor works out for you all! Wish there were easier answers.