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Member
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Join Date: Feb 2013
Location: Salt Lake City, Utah
Posts: 520
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Member
Join Date: Feb 2013
Location: Salt Lake City, Utah
Posts: 520
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I know exactly what you mean. You would think (and I did but learned better) that doctors would tell you what kind of specialist or treatment to try but no they just leave it up to us. I have not been able to figure out how to get myself help with my brain not working. If your lucky you have a spouse that helps you but if your on your own it is so stressful. I would of been so grateful if any doctor out of all the ones that I saw in the hospital and out would of said -you know you need to see a neurologist. I had no idea what kind of doctor to go to. I had pain so went to a pain specialist. I am so glad that I have found a team of people to help me now, or at least direct me as to what kind of treatment I need to have that may help to get me functioning again. So this is a warning to anyone newly injured or in need of a diagnosis or treatment - don't count on the medical community to direct you in any way. It is up to you to find the correct treatment.
So frustrating.
Brain
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Brain patch.
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Had MVA in 2006 resulting in post concussive syndrome manifested by cognitive impairment, chronic pain/ fatigue. Chronic pain of head, neck, back, left leg.
Other problems include REM sleep behavior disorder, nocturnal frontal lobe epilepsy, chronic migraines associated with nausea/vertigo, episodes of passing out, hypoglycemia, liver dysfunction (had accidental overdose of acetaminophen in 2009) had liver and kidney failure, hernia, degenerative disc disease with compression of nerve root, PTSD, and other problems associated with functioning problems from traumatic brain injury (light, sound sensitive, easily overloaded, easily distracted, cannot focus, anxiety problems etc.)
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