I know exactly what you mean. You would think (and I did but learned better) that doctors would tell you what kind of specialist or treatment to try but no they just leave it up to us. I have not been able to figure out how to get myself help with my brain not working. If your lucky you have a spouse that helps you but if your on your own it is so stressful. I would of been so grateful if any doctor out of all the ones that I saw in the hospital and out would of said -you know you need to see a neurologist. I had no idea what kind of doctor to go to. I had pain so went to a pain specialist. I am so glad that I have found a team of people to help me now, or at least direct me as to what kind of treatment I need to have that may help to get me functioning again. So this is a warning to anyone newly injured or in need of a diagnosis or treatment - don't count on the medical community to direct you in any way. It is up to you to find the correct treatment.
So frustrating.
Brain