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Old 05-16-2013, 03:53 AM
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Wide-O Wide-O is offline
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Location: Europe
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Quote:
Originally Posted by mrsD View Post
There are ups and downs to PN... and also weather may trigger you still. The low pressures that come with storms remain very painful for me, even after all these years!
It still does; we happen to have one for the last 5 days, and I can definitely feel that.

"But didn't you say you were doing better?" Sure, this may seem contradictory, but even now my nerves seem to be responding to a great many things, and doing better doesn't mean that you stop experiencing this. Pain/sensations are hard to describe, but in my case now doing a bit less better means some faint sensations of prickling - like when your foot has been asleep and wakes up from that. However: no pain worth mentioning today!

Quote:
Originally Posted by Beachbum65 View Post
That's really great to hear, I also have taken the supplements for a few months now and they really help me so far but the key for me was to cut out the junk food low carb, low fat, no fried foods and sugar. Yes you are really on to something here I know it ! I have lost 41 lbs. so far and that kinda worries me a bit because I really don't need to lose much more tho. Sounds like you found the CURE ! I am so happy for you as I feel I am on the right path too. My pain is still very bad and these flare ups put me down for days if not a week or longer sometimes. I believe this forum saved our lives along with countless others I would imagine. Thanks to all the kind people that care about perfect strangers who need help in their darkest days. I still have miles to go but maybe I will get there one day . Peace !
Thanks. I realize I left out a big part in my previous post, and that is how my suspicions about sugar were confirmed and explained.

Note: I'm NOT saying sugar causes PN! I'm saying that in my case, excessive consumption of sugar somehow prevented my body from healing. Once we have PN, we seem to be sensitive to a great many things, including those who may not cause PN directly (then again, sugar does cause diabites Type II, which can lead to PN). Allergies that seem to be benign, can become a source of great pain once you have PN.

After the LDL outcome, I started searching on the net for alternatives to statins - and because Mrs. D. warned me about fibrates - I did not start taking those. I didn't have much luck and (d'oh) searched on this forum again. That lead me to the video of Dr. Robert Lustig, made by the University of California Integrative (hmmm... I've seen that word before... ) Medicin : Sugar: The Bitter Truth.

It's a good 1.5 hours long, but really worth watching. On the basis of that video, I bought "Fat Chance", his most recent book (I prefer reading to videos). Not only did it make a lot of sense from a science pov, it possibly explained my own history of the last year. If you had sat next to me while I read that book, you'd have heard a lot of clicking going on in my brain.

Even if you don't buy the link between PN pains and sugar (we are all different) it still is worth while viewing for all of us who struggle with high cholesterol and thus can not use statins. Reducing sugar intake, and to be clear, he means fructose, yes, even the "natural" stuff, will most definitely lower your LDL. Moreover, it will lower the bad LDL (there's more than one type).

He also managed to convince me to eat an orange instead of juicing it (yes, the fibers are important), and to start eating breakfast... For those who don't have the time to watch the video, we are not just talking about the refined sugar: we are talking about sugar that has found its way into 100% of all processed foods.

Sugar also explains my sudden (first time) outburst of gout in November last year. And trust me: gout combined with PN almost gives a new meaning to the word "pain".

I have then searched for websites/videos that (try to) debunk or oppose Dr. Lustig's findings, and I didn't find a whole lot. Yes, some say he's demonizing sugar. But the science, the biochemistry that he explains in extenso, stands.

Anyway, thanks for the kind words.
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"Thanks for this!" says:
ginnie (09-05-2013), Idiopathic PN (05-16-2013), mrsD (05-16-2013)