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Member
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Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Member
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
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Sorry you are experiencing symptoms. What type of symptoms do you have and how severe are they? What is your dosing schedule for Mestinon?
It takes a long time to find the combination of treatment that works for each person. I have had symptoms for over 2 years, but just got the official diagnosis 6 months ago. My MG is still not stable yet. I take 60 mg of Mestinon 4 times a day and 180 mg at night. I am currently weaning off pregnisone - down to 30mg a day. I trying to get IVIG treatments approved by insurance.
Did they scan your Thymus? I am still hoping for a thymectomy.
kathie
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