Thread: mjp67
View Single Post
Old 05-25-2013, 06:40 PM
cait24's Avatar
cait24 cait24 is offline
Member
 
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
10 yr Member
cait24 cait24 is offline
Member
cait24's Avatar
 
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
10 yr Member
Default

Sorry you are experiencing symptoms. What type of symptoms do you have and how severe are they? What is your dosing schedule for Mestinon?

It takes a long time to find the combination of treatment that works for each person. I have had symptoms for over 2 years, but just got the official diagnosis 6 months ago. My MG is still not stable yet. I take 60 mg of Mestinon 4 times a day and 180 mg at night. I am currently weaning off pregnisone - down to 30mg a day. I trying to get IVIG treatments approved by insurance.

Did they scan your Thymus? I am still hoping for a thymectomy.
kathie
cait24 is offline   Reply With QuoteReply With Quote