Home Menu

Site Navigation



Myasthenia Gravis For support and discussions on Myasthenia Gravis, Congenital Myasthenic Syndromes and LEMS.

NeuroTalk Support Groups > > >

mjp67

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 05-25-2013, 06:40 PM #4
cait24's Avatar
cait24 cait24 is offline
Member
  
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
10 yr Member
cait24 cait24 is offline
Member
cait24's Avatar
 
Join Date: Sep 2012
Location: Newtown, PA
Posts: 709
10 yr Member
Default
Sorry you are experiencing symptoms. What type of symptoms do you have and how severe are they? What is your dosing schedule for Mestinon?

It takes a long time to find the combination of treatment that works for each person. I have had symptoms for over 2 years, but just got the official diagnosis 6 months ago. My MG is still not stable yet. I take 60 mg of Mestinon 4 times a day and 180 mg at night. I am currently weaning off pregnisone - down to 30mg a day. I trying to get IVIG treatments approved by insurance.

Did they scan your Thymus? I am still hoping for a thymectomy.
kathie
cait24 is offline   Reply With QuoteReply With Quote
 

« Previous Thread | Next Thread »

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts
BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


All times are GMT -5. The time now is 05:02 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

All posts copyright their original authors.

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.

Always consult your doctor before trying anything you read here.

Home