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Old 05-01-2015, 05:53 AM #1
Dubinin Dubinin is offline
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Low grade and continual paresthesias - L sole, L middle fingers, Right smallest fingertips. No signs on waking. Seemed to be onsetting at about the same time every night. Possibly onsetting later and later as the weeks roll on.

Arms are coming back to old form. Upper legs and especially left calf show some muscle loss. Upper legs- muscle loss above outside knee joint. Calves and anterior tibialis both legs show signs of atrophy. Expect they will suddenly re-appear just as my arms re-appeared. No strength loss. Have commenced intensive exercise for legs to promote (re)growth by stimulating hypertrophy pathways.

Maintaining vitamin regimen with addition of 1000IU Vitamin E daily in two doses.

Most aggravating and troubling part of this - persistence of paresthesias, even though not as intense as April 3. And noticeable loss of muscle. Tone is okay, now. Some flaccidity before. Better tone now. Muscle loss seems to happen very quickly, and comes back very quickly - I noticed this pattern a while ago during main part of the fight with myopathy.

Some abnormal sense of pounding in extremities - toes, esp fingers, when vigorously used - including trying to play guitar earlier.

Twitches in right upper pec and right tricep.

(Acute myopathy -dx approx Feb 2014. Chronic myopathy from August 2014 - very approximately).
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mrsD (05-07-2015)
Old 05-01-2015, 10:22 PM #2
Bobby78 Bobby78 is offline
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Your notes are insightful...thought you should know. Helpful to others, keep at it.
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Dubinin (09-24-2015)
Old 05-02-2015, 09:30 AM #3
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Dubinin... Please don't use iron products unless you have tested low in iron at the doctor's office. Excess iron in males, has been linked to heart disease and attacks.

And to make things better for your muscles and nerves, magnesium may help. SlowMag, one twice a day, is good to fix low levels of that. May heavy drinkers become low in magnesium over time due to the diuretic actions of the alcohol. Caffeine also has the same effect.

This is my magnesium thread:
http://neurotalk.psychcentral.com/thread1138.html
Soaking in epsom salts baths may help too. Or using the lotion, Morton Epsom lotion, on target spots, will work too. But it is not designed to use all over the body. Apply it to feet one day, (tops not bottoms), calves one day, thighs, the next...and rotate. It is really a wonderful way to relax muscles and provide the body with some magnesium that way. I use it every day myself. WalMart, Walgreen's and online at Amazon. (not all stores carry it yet).
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Dubinin (09-24-2015)
Old 05-07-2015, 03:43 PM #4
Dubinin Dubinin is offline
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Thank you, Mrs D. There is plenty of research to suggest there may be links between heart disease and dysfunction and too much iron. It is also a reason why a doctor I know donates blood regularly - too much iron.

I was taking magnesium and then when I ran out after one month, I did not buy it again. But, I will. We will see if it makes any difference.


Quote:
Originally Posted by mrsD View Post
Dubinin... Please don't use iron products unless you have tested low in iron at the doctor's office. Excess iron in males, has been linked to heart disease and attacks.

And to make things better for your muscles and nerves, magnesium may help. SlowMag, one twice a day, is good to fix low levels of that. May heavy drinkers become low in magnesium over time due to the diuretic actions of the alcohol. Caffeine also has the same effect.

Thank you for the link to your thread. Topical applications interest me.

This is my magnesium thread:
http://neurotalk.psychcentral.com/thread1138.html
Soaking in epsom salts baths may help too. Or using the lotion, Morton Epsom lotion, on target spots, will work too. But it is not designed to use all over the body. Apply it to feet one day, (tops not bottoms), calves one day, thighs, the next...and rotate. It is really a wonderful way to relax muscles and provide the body with some magnesium that way. I use it every day myself. WalMart, Walgreen's and online at Amazon. (not all stores carry it yet).
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mrsD (05-07-2015)
Old 05-07-2015, 03:37 PM #5
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Quote:
Originally Posted by Bobby78 View Post
Your notes are insightful...thought you should know. Helpful to others, keep at it.
Thank you very much! I wondered if it might be helpful to anyone. It is always a hope. I know what it is like to look for answers
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