Experts Hack for Lyme Disease Solutions in Boston and Berkeley

https://www.morningstar.com/news/pr-...-berkeley.html


Lyme disease is often portrayed as 'falsing' the symptoms of ALS and those who try to determine whether they have Lyme disease are often frustrated the tests for Lyme are not very reliable.

see also:

Hacking Lyme Disease
https://www.massbio.org/news/blog/ha...disease-122003

I thought this event already happened . . . :

Lyme Innovation: Three Day Hackathon Jun 17-19, 2016
http://lymeinnovation.org/upcoming-events/

Although it probably will not stay there, for the first time the set of patients I am following achieved sufficient days to exceed the 'maximum' life expectancy . . . the data set has deficiencies such as inadequent date specifications and patients who have not been heard from in a long time. I detected several of these long lost cases recently; although most did not change the data much, some did. I am currently reviewing the data set from the point of view of 'false positive' . . . the chance these results are 'false positive' is? . . . I expect it to be small, I am hoping it will be smaller than one would likely guess.

Discovered Charley remains with us:

http://iydlify.blogspot.com/

due to post dated April 23. Was implanted in 2009.

I remember a paper referring to a study in Scotland regarding the gastronomy tube and very high death rate of 25% and then remembered the Scottish games, wherein one event involves individuals tossing around telephone poles. The higher death rate might well be linked to larger size of Scottish people, though the report might not have indicated same. Never the less, as I would suggest, not only should ALS patients tone down the jogging, avoid, too, the caber toss until an ALS cure is found and you have full recovered.

Caber Toss
Scottish Heavy Athletics - Caber Toss

Diaphragm Pacing May Be Harmful in ALS

Diaphragm Pacing May Be Harmful in ALS | Medpage Today

At least 100 cases reached more than the upper level life expectancy; forty-seven continue to be approaching but many of these are without a contact in quite a long time. Seventy-four have been discovered to have passed away. Many cases remain without complete data for complete analysis. At least 67% or two-thirds of the patients whom I have found providing data on the web have exceeded the upper level life expectancy where only about 20% were expected to do so . . . thus much bias must be found in order to challenge the efficacy 'claim' this set is representing. The more recent cases seem to be doing better . . . possibly because patients obtain their implant nearer the optimal point in the disease's course. We should remind ourselves the symptoms may belong to more than one actual disease and plausibly the pacer doesn't help with every one of them. Further research is needed to find 'fault-lines' to help us ascertain the basis for benefit and, if there are case types the treatment will not benefit then how to detect them, especially if there are cases where the treatment might cause harm.

Sorry to have been away for a while; unexpected circumstances. Priority one is updates. . . .