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04-01-2008, 08:57 AM | #1 | |||
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In Remembrance
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Welcome to the PatientsLikeMe Public ALS RegistryThis is a registry for Amyotrophic Lateral Sclerosis (Lou Gehrig's Disease, or ALS) intended to help Persons with ALS (PALS) reach out to each other and stand up and be counted. It was originally started it as a mailing list by Bobby Brannigan, PALS and PatientsLikeMe community member, and it is now being maintained by PatientsLikeMe. If you are a PALS, you can add your name by signing up for a PatientsLikeMe account and filling out your profile. If you have any questions about privacy or terms of service, email PatientsLikeMe at support@patientslikeme.com.
You can help by passing this info on to other PALS. PatientsLikeMe members, want to see your name listed here? Just enable your ALS Public Registry permission and fill out your first and last names! There are 1025 PALS in the registry who recently joined us. from 52+ countries. hello and welcome to plm. im hoping to get you to sign on the ALS registry. You just click on your profile then click on Account , click on privacy settings and put a check in the box for ALS registry. Then your name will show on the registry page at http://www.patientslikeme.com/registry thank you BB
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. ALS/MND Registry . |
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