ALS News & Research For postings of news or research links and articles related to ALS

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 06-05-2008, 02:50 PM #1
BobbyB's Avatar
BobbyB BobbyB is offline
In Remembrance
 
Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
15 yr Member
BobbyB BobbyB is offline
In Remembrance
BobbyB's Avatar
 
Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
15 yr Member
Thumbs up Call to Action for All Veterans with ALS

VA Issue Team Vice-Chair Scheduled to Testify to Congress
Call to Action for All Veterans with ALS



We are excited to announce that Jeff Faull, a veteran with ALS from our Greater Philadelphia Chapter and the Vice-Chair of The ALS Association's VA Issue Team, is scheduled to testify before the House Veterans Affairs Committee as it examines the recently introduced HR 5454 and other legislation at a June 12, Capitol Hill hearing. The Association has worked closely with the Committee as it prepares for the hearing and we are pleased that they have responded to our outreach by inviting Jeff to testify.

The ALS Association is leading the effort to pass HR 5454, which would establish ALS as a service connected disease, helping to ensure that veterans with ALS have access to health and disability benefits through the Department of Veterans Affairs. The bill was a top priority during our meetings with Members of Congress at National ALS Advocacy Day in May and we have worked closely with two of The Association's strongest supporters in Congress, Reps. Henry Brown (R-SC) and David Price (D-NC), as they introduced this bill earlier this year.

As a Navy veteran who served between 1992-2000, a husband, and father of two young daughters, Jeff brings an essential perspective to the hearing and can demonstrate first hand why HR 5454 is so urgently needed and why much more must be done to support veterans with ALS.


However, we need your help! We want to let the Committee know that there are thousands of other veterans just like Jeff who each day continue to fight for their benefits while they fight this disease.

Therefore, if you are a veteran with ALS, please go to our website and join our Roll Call of Veterans.

We will add your name, branch of service and hometown to the Roll Call and deliver it to the Committee at the hearing. Our goal is to identify as many veterans with ALS as possible and show the Committee the true magnitude of this disease, its impact on veterans and families, and the risk faced by those serving in the military today.

It is absolutely critical that Congress understands that this disease continues to strike our heroes from across the country and that Congress must act to ensure that veterans with ALS receive the benefits they deserve and have earned.

So reach out and be counted! Join the Roll Call of Veterans today!

If you've already signed-up, please enter your name and email address on the website and check your profile to make sure you're listed as a military veteran. And forward this Alert to every veteran you know. We want to make sure every veteran counts!

If you have any questions or would like assistance joining the Roll Call of Veterans, please contact us at advocacy@alsa-national.org or toll-free at 1-877-444-ALSA.
__________________

.

ALS/MND Registry

.
BobbyB is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
NIH Funding Vote--Take Action and call your representative olsen Tourette Syndrome 0 11-14-2007 03:21 PM
NIH Funding Vote-Take Action and call your representative olsen Autism 0 11-14-2007 03:20 PM
NIH Funding Vote -Take Action and call your representative olsen Alzheimer's Disease 0 11-14-2007 03:19 PM
NIH Funding Vote---Take Action and call your representative olsen ALS 0 11-14-2007 03:18 PM


All times are GMT -5. The time now is 10:21 AM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.