ALS News & Research For postings of news or research links and articles related to ALS


advertisement
 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 07-23-2008, 03:37 PM #1
BobbyB's Avatar
BobbyB BobbyB is offline
In Remembrance
 
Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
15 yr Member
BobbyB BobbyB is offline
In Remembrance
BobbyB's Avatar
 
Join Date: Aug 2006
Location: North Carolina
Posts: 4,609
15 yr Member
Thumbs up Urging folks to get involved in fight against ALS

Urging folks to get involved in fight against ALS
Bobby Brannigan, Spruce Pine • published July 23, 2008 12:15 am

Post a CommentRecommend Print this page E-mail this article
Comments on Topix forums (click to comment): Read 2 comments »

I have amyotrophic lateral sclerosis, better known as Lou Gehrig’s disease. I can no longer work, and walk with great difficulty, and my family and I are faced with some life-changing decisions. However, I have not written for sympathy.

In the fall of 2007, Sen. Harry Reid presented SB1382 to develop a system to establish a national ALS registry. The purpose would have been to better describe the incidence and prevalence of ALS, examine the appropriate factors and include demographic factors such as race, age, gender and family history.

A similar bill passed the House, 441 yes votes, four nays and 17 not voting.

The bill has 76 co-sponsors in the Senate. Republican Sen. Tom Coburn, a medical doctor from Oklahoma, has single-handedly blocked this bill.

The number of people with ALS is only a guess. Many are misdiagnosed or never diagnosed because of quick death. With a registry we might be able to find common factors and eventually a link to so many unanswered questions about this disabling disease. Research is being done, but without supporting data, a cure may never be found.

Please join me in protest of Coburn. Let him know this hold must be lifted.

Bobby Brannigan, Spruce Pine


http://www.citizen-times.com/apps/pb...cAnPVvmmHNg%3D
__________________

.

ALS/MND Registry

.
BobbyB is offline   Reply With QuoteReply With Quote
 


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
SATs - What's involved, how to do them? lady_express_44 The Stumble Inn 8 06-26-2008 09:28 PM
Dopamine D2 receptors involved in learning from mistakes olsen Parkinson's Disease 0 12-07-2007 02:31 PM


All times are GMT -5. The time now is 08:33 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.