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ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB. |
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Hi Jeff, Harry is a member of the ALSTDF forum, he last posted on 08/23/06 seen here http://www.als.net/forum/topic.asp?T...41&whichpage=2 you might be able to email him there?
His user profile can be located here http://www.als.net/forum/pop_profile...display&id=503 Jeannie x |
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No one was a hypocrit it was just grabbing at hope and believing the bull that some researchers told them.
What really bothered me was that a very high respected allias gentleman researcher [hate to call him doctor] knew all about at least one of the shysters and yet didn't have the courage to come right out and tell us. The members that were there learnt a lesson they won't soon forget and unfortunately some lost that hope in the process. Many have drifted away because of it. So don't blame the members for finding the truth and stating it you put the blame where it should be on the backs of those who see the monies to be made and the medical profession for the members who only see their own private status quo and are afraid to rock anyones boat less it happen to them. And of course on the website that allowed it to go on endlessly till it had been proven by us. They took off anyone selling a bloody watch and left those who were taking life savings for a lost cause. So don't blame each other as we were the victims and not the perpetrators. |
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