ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.


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Old 02-08-2007, 05:35 PM #11
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I did not see the part about your changes in consciouness. Does it happen often?
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Old 02-08-2007, 05:57 PM #12
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A few times I have just spaced out and blacked out once. They have done an ultra souind on my heart which was negative for abnormalities and I am wearing a heartrack for 4 weeks to see if I have arythmias. But nothing so far as testing my nerves or muscles...
I had to actually set up with an other doctor to get the EEG scheduled for Tomorrow morning, she is the one who wants to test for seizures my PCP is to worried about it being my heart
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Old 02-08-2007, 06:14 PM #13
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It sounds like you are on the right track. When you talk to your doctor tomorrow tell her your concerns. Best of luck
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Old 02-08-2007, 06:16 PM #14
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Thanks Okla
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Old 02-08-2007, 07:25 PM #15
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yes good luck hope they find something they can fix.
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Old 02-10-2007, 05:54 PM #16
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My feeling is that you are unlikely to have A.L.S. because your symptoms do not match the syndrome. It does sound like there is something wrong - an important A.L.S. test is an EMG, which is similar to an EEG: both measure neurological activity - the EMG measures this activity at the neuro-muscular junction, whereas the EEG tries to measure the activity in the brain itself. I am not a medical expert and have no idea what your symptoms could add up to; I know something about A.L.S. and your age and symptoms strongly imply that A.L.S. is extremely unlikely - its not very likely in most cases in any event: out of 300 million people there are about 5,000 'diagnoses' each year - usually of people who are a lot closer to fifty or sixty years old. A.L.S. is not so much a diagnosis as it is the result of the elimination of all other known_ possibilities and verification that the symptoms are the same. I hope you find out what is wrong and obtain effective treatment.

Last edited by MuonOne; 02-12-2007 at 02:59 PM. Reason: slightly improved statement
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Old 02-12-2007, 03:00 PM #17
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that's an unusual way to leave a message^. . . . . hmmmmm, now the message is gone, is that normal?

magnus: my understanding is that usually the early symptoms are discovery of diminished fine motor control, feet not raising or decreased speaking ability. The conditions usually persist and then gradually worsen. You mentioned sensory perception issues in some of your posts and that is usually an indication that something else is wrong. I wouldn't know what . . . some of your symptoms do occur in A. L. S. though - I understand that cramping and twitching can also be a sign of an insufficiency in potassium or an unusual amount of stress.

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Old 02-14-2007, 12:01 PM #18
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I was just curious to know what the symptoms were for ALS.
I thought muscle twitching and cramping were common in the disease.
My muscles in my legs seem to be wasting and fatigue really easy; like just walking a few mintues. I also started getting bad cramps in my right foot; right in the middle where the arch is.
The results of my EEG should be in some time this week or next. Should I ask the doctor to order one of those EMGs?
Latley I am jsut so very tired and the spasms do not stop

Happy Valentines Day all
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Old 02-15-2007, 10:25 AM #19
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Magnus, How long have you had this condition? What did your doctor say about your concerns about ALS?
Do a forum jump and go to General Health conditions and rare disorders. You might get more responses. You can find the menue at the bottom of the page when you log in. Take care.
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Old 02-15-2007, 09:30 PM #20
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The muscle spasms, cramps and fatigue started about 3 months ago with a lot of weight loss
I havent been to the doctor yet. Have a Follow up on Monday to find out the results on my EEG. Im going to tell her how the spasms and cramps are getting worse and push to have an EMG done hopefully as I am on HMO...
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