The only test I am getting is an EEG which is to see if my reasons for changes in consciouness at times. My insurance is not that good and I fear my doctor does not want to give me tests to see what the problem is.

I did not see the part about your changes in consciouness. Does it happen often?

A few times I have just spaced out and blacked out once. They have done an ultra souind on my heart which was negative for abnormalities and I am wearing a heartrack for 4 weeks to see if I have arythmias. But nothing so far as testing my nerves or muscles...
I had to actually set up with an other doctor to get the EEG scheduled for Tomorrow morning, she is the one who wants to test for seizures my PCP is to worried about it being my heart

It sounds like you are on the right track. When you talk to your doctor tomorrow tell her your concerns. Best of luck

Thanks Okla

yes good luck hope they find something they can fix.

My feeling is that you are unlikely to have A.L.S. because your symptoms do not match the syndrome. It does sound like there is something wrong - an important A.L.S. test is an EMG, which is similar to an EEG: both measure neurological activity - the EMG measures this activity at the neuro-muscular junction, whereas the EEG tries to measure the activity in the brain itself. I am not a medical expert and have no idea what your symptoms could add up to; I know something about A.L.S. and your age and symptoms strongly imply that A.L.S. is extremely unlikely - its not very likely in most cases in any event: out of 300 million people there are about 5,000 'diagnoses' each year - usually of people who are a lot closer to fifty or sixty years old. A.L.S. is not so much a diagnosis as it is the result of the elimination of all other known_ possibilities and verification that the symptoms are the same. I hope you find out what is wrong and obtain effective treatment.