Alffe ,
I absolutely agree.
The even sadder thing is this man is a physician. ( although an OB/ Gyn who has probably no clue about ALS )
It is kind of hard to keep political discussions out of medicine sometimes , because some politicians keep hindering medical progress.
It not a partisan problem though , and certainly not with this bill.
--Lisa

2.1. Re: Senators with Aspirations...
Posted by: "Chuck Hummer" gamboachuck@yahoo.com gamboachuck
Date: Sun Jan 20, 2008 6:21 pm ((PST))

rknt,

I am not only surprised but very disappointed to see two of the main
senators seeking their party's nomination are turning their backs on
the national ALS registry. But when I look at those who are still not
co-sponsoring it really pains me. Perhaps some of the voters from
their states will take the time to let them know how important this
bill is to all of us in the ALS community. This is the latest list of
non co-sponsors from the ALSA site tonight.

S 1382, National ALS Registry Act- Senators not yet co-sponsoring.

Alabama Richard Shelby (R) --- Arizona John McCain (R) --- Jon
Kyl (R) --- Colorado Ken Salazar (D) --- Wayne Allard (R) ---
Idaho Mike Crapo (R) --- Illinois Barack Obama (D) --- Indiana
Richard Lugar (R) --- Kansas Pat Roberts (R) --- Kentucky Mitch
McConnell (R) --- Massachusetts Edward Kennedy (D) --- Mississippi
Roger Wicker (R) --- Missouri Christopher Bond (R) --- Nebraska
Ben Nelson (D) --- Nevada John Ensign (R) --- New Hampshire
Judd Gregg (R) --- New Mexico Pete Domenici (R) --- Ohio George
Voinovich (R) --- Oklahoma James Inhofe (R) --- Tom Coburn (R)
--- Pennsylvania Arlen Specter (R) --- Tennessee Lamar Alexander
(R) --- Bob Corker (R) --- Texas Kay Bailey Hutchison (R) ---
John Cornyn (R) --- Utah Orrin Hatch (R) --- West Virginia
Robert Byrd (D) --- John Rockefeller (D) --- Wisconsin Herbert
Kohl (D) --- Russ Feingold (D) --- Wyoming Michael Enzi (R) ---
John Barrasso (R) ---

By jingles, do I see a fairly large number of R's in this list? Does
this have some meaning as we approach major elections next November?





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Yahoo! Groups Links

<*> To visit your group on the web, go to:
http://groups.yahoo.com/group/alsadvocacy/

Amyotrophic Lateral Sclerosis (Lou Gehrig's disease) resource support group, for ALS patient caregivers and friends, sponsored by the ALS Association, 2-4 p.m. Sunday, George Mason Regional Library, 7001 Little River Tpk., Annandale. Free. 301-978-9855 or http://www.ALSinfo.org.

Congress Reconvenes: Contact Your Senators!



As the Senate returns to Washington, DC this week to reconvene for the second session of the 110th Congress, now is the time to continue your outreach to the Senate in support of the ALS Registry Act (S. 1382). Thanks to the efforts of advocates from across the country, nearly 70 Senators - more than two-thirds of the Senate - have cosponsored the bill! However, it is important that we continue to generate new cosponsors.

Listed below are the Senators who have yet to cosponsor the ALS Registry Act. If you live in one of these states, please contact your Senator today and forward this alert to friends, family and colleagues who live in these states as well. Sample letters that you can personalize are available in the Advocacy Action Center of our website. Let Senators know how important an ALS registry is to their constituents and why it is so critical that the Senate pass the bill as soon as possible. Let them know that people with ALS don't have time to wait!

Please remember, since Members of Congress are most responsive to their constituents, only contact these Senators if you live in their state. If your Senators already have cosponsored the bill, please thank them and ask that they work with their colleagues to pass the ALS Registry Act as soon as possible this year.

Arizona: Senators John McCain & Jon Kyl
Colorado: Senators Wayne Allard & Ken Salazar
Idaho: Senator Mike Crapo
Illinois: Senator Barack Obama
Indiana: Senator Richard Lugar
Kansas: Senator Pat Roberts
Kentucky: Senator Mitch McConnell
Mississippi: Senator Roger Wicker
Missouri: Senator Kit Bond
Nebraska: Senator Ben Nelson
Nevada: Senator John Ensign
New Hampshire: Senator Judd Gregg
New Mexico: Senator Pete Domenici
Ohio: Senator George Voinovich
Oklahoma: Senators James Inhofe & Tom Coburn
Pennsylvania: Senator Arlen Specter
Tennessee: Senators Lamar Alexander & Bob Corker
Texas: Senators Kay Bailey Hutchison & John Cornyn
Utah: Senator Orrin Hatch
West Virginia: Senators John Rockefeller & Robert Byrd
Wisconsin: Senators Herb Kohl & Russ Feingold
Wyoming: Senator John Barrasso
As we continue to work with our champions in the Senate, Senators Harry Reid (D-NV) and John Warner (R-VA) to bring the ALS Registry Act to the floor for a vote, we will keep you up-to-date on the latest developments and let you know what additional grassroots outreach is requested by Senators Reid and Warner.

In the meantime, please keep up the great work!

Thank you!