FAQ/Help |
Calendar |
Search |
Today's Posts |
![]() |
|
ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB. |
Reply |
|
Thread Tools | Display Modes |
|
![]() |
#1 | |||
|
||||
In Remembrance
|
National ALS Registry Efforts Underway
The ALS Association’s 2007 Public Policy Priorities (PRIORITY #1) Pass the ALS Registry Act. (PRIORITY #2) Include funding dedicated for ALS specific programs at the Department of Defense (DOD). http://www.catfishchapter.org/news/issues.html http://www.alsa.org/policy/article.cfm?id=1091
__________________
. ALS/MND Registry . |
|||
![]() |
![]() |
![]() |
#2 | |||
|
||||
In Remembrance
|
![]() http://energycommerce.house.gov/ House Subcommittee Passes ALS Registry Act We are extremely pleased to report that this morning, the House Energy and Commerce Committee Subcommittee on Health unanimously passed the ALS Registry Act (HR 2295). The bill is now cleared to move forward in the House and next will head to the full Energy and Commerce Committee. This is a tremendous victory and is one of the most critical steps in the legislative process, as most bills introduced in Congress never make it "through Subcommittee."
__________________
. ALS/MND Registry . |
|||
![]() |
![]() |
![]() |
#3 | |||
|
||||
In Remembrance
|
There is a bill in congress right now to create a mechanism to track ALS. Please help it pass by using links below.
http://capwiz.com/alsa/issues/alert/?alertid=9048996 (Senate bill); http://capwiz.com/alsa/issues/alert/?alertid=9048906 (House bill). It is super easy and quick to send them a form email, and easy to modify and personalize the message. Elected Officials Find elected officials, including the president, members of Congress, governors, state legislators, local officials, and more. http://capwiz.com/alsa/dbq/officials/ Search By ZIP Code: Congress: State: Local: http://capwiz.com/alsa/dbq/officials/ Search By Last Name: Congress: State: Local: Any State http://capwiz.com/alsa/dbq/officials/ Select State
__________________
. ALS/MND Registry . Last edited by BobbyB; 07-29-2007 at 10:02 AM. |
|||
![]() |
![]() |
Reply |
|
|
![]() |
||||
Thread | Forum | |||
The need for a registry | ALS | |||
ALS Registry Act | ALS | |||
Welcome to the ALS/MND Registry | ALS | |||
Welcome to the ALS/MND Registry | ALS | |||
Welcome to the ALS/MND Registry | ALS |