Approve bill to create registry for ALS disease



To most of us the summer means backyard barbecues and taking vacations. For Americans living with the neurodegenerative disease Amyotrophic Lateral Sclerosis - ALS - the summer has another meaning. It's the time of year, when ALS became Lou Gehrig's disease.

Lou Gehrig's disease is a fatal disease that erodes a person's ability to move their muscles. As the disease progresses, many no longer are able to move their arms, walk, breathe on their own, speak or even wink an eye, yet their minds remain sharp. They are isolated and awake, alive with the knowledge that they are trapped inside their own bodies.

Unfortunately, in the 68 years since Gehrig's speech, we still do not know what causes the disease, how it can be prevented, effectively treated or cured.

We don't even know how many Americans have the disease or die from it each year.

In fact, the prognosis for a person diagnosed with Lou Gehrig's disease in the summer of 2007 is largely the same as it was for Gehrig himself nearly 70 years ago: death in an average of two to five years.

This year, the U.S. Congress has an opportunity to help our nation make progress in the fight against Lou Gehrig's disease by passing legislation - HR 2295/S. 1382 - to create a nationwide ALS registry.

The ALS Registry Act would help identify the incidence and prevalence of ALS in the United States and collect data which is urgently needed for ALS research, disease management and the development of standards of care. In short, the legislation can help us find a treatment and cure.

So as you head out to spend time with your family and friends this summer, please remember those in our community who are fighting his disease. Urge Congress to pass the ALS Registry Act!

Nancy Adkins

Congressional Legislation - Search Results

All Non-Cosponsors from All States

Bill Name: 'To amend the Public Health Service Act to provide for the establishment of an Amyotrophic Lateral Sclerosis Registry.'
Bill Number: H.R.2295

Cosponsor? Cosponsor Name Cosponsor Date Send Mail
Alabama
Robert Aderholt (R 4th) ---
Spencer Bachus (R 6th) ---
Alaska
Don Young (R At-Large) ---
American Samoa
Eni Faleomavaega (D At-Large) ---
Arizona
Rick Renzi (R 1st) ---
Trent Franks (R 2nd) ---
John Shadegg (R 3rd) ---
Harry Mitchell (D 5th) ---
Jeff Flake (R 6th) ---
Gabrielle Giffords (D 8th) ---
Arkansas
Vic Snyder (D 2nd) ---
California
Wally Herger (R 2nd) ---
Dan Lungren (R 3rd) ---
Nancy Pelosi (D 8th) ---
Barbara Lee (D 9th) ---
Ellen Tauscher (D 10th) ---
Tom Lantos (D 12th) ---
Michael Honda (D 15th) ---
Zoe Lofgren (D 16th) ---
Dennis Cardoza (D 18th) ---
Jim Costa (D 20th) ---
Kevin McCarthy (R 22nd) ---
Howard McKeon (R 25th) ---
David Dreier (R 26th) ---
Xavier Becerra (D 31st) ---
Maxine Waters (D 35th) ---
Grace Napolitano (D 38th) ---
Ed Royce (R 40th) ---
Jerry Lewis (R 41st) ---
Joe Baca (D 43rd) ---
Dana Rohrabacher (R 46th) ---
John Campbell (R 48th) ---
Darrell Issa (R 49th) ---
Brian Bilbray (R 50th) ---
Duncan Hunter (R 52nd) ---
Colorado
Mark Udall (D 2nd) ---
John Salazar (D 3rd) ---
Marilyn Musgrave (R 4th) ---
Doug Lamborn (R 5th) ---
Thomas Tancredo (R 6th) ---
Ed Perlmutter (D 7th) ---
Connecticut
John Larson (D 1st) ---
Joseph Courtney (D 2nd) ---
Rosa DeLauro (D 3rd) ---
Florida
Jeff Miller (R 1st) ---
F. Allen Boyd (D 2nd) ---
Corrine Brown (D 3rd) ---
Ander Crenshaw (R 4th) ---
John Mica (R 7th) ---
Gus Bilirakis (R 9th) ---
Connie Mack (R 14th) ---
Timothy Mahoney (D 16th) ---
Kendrick Meek (D 17th) ---
Lincoln Diaz-Balart (R 21st) ---
Alcee Hastings (D 23rd) ---
Mario Diaz-Balart (R 25th) ---
Georgia
Jack Kingston (R 1st) ---
Sanford Bishop (D 2nd) ---
Lynn Westmoreland (R 3rd) ---
Hank Johnson (D 4th) ---
Tom Price (R 6th) ---
John Linder (R 7th) ---
Nathan Deal (R 9th) ---
Paul Broun (R 10th) ---
Phil Gingrey (R 11th) ---
David Scott (D 13th) ---
Idaho
William Sali (R 1st) ---
Illinois
Dan Lipinski (D 3rd) ---
Luis Gutierrez (D 4th) ---
Peter Roskam (R 6th) ---
J. Dennis Hastert (R 14th) ---
Timothy Johnson (R 15th) ---
Donald Manzullo (R 16th) ---
Phil Hare (D 17th) ---
Indiana
Peter Visclosky (D 1st) ---
Steve Buyer (R 4th) ---
Mike Pence (R 6th) ---
Brad Ellsworth (D 8th) ---
Iowa
Dave Loebsack (D 2nd) ---
Steve King (R 5th) ---
Kansas
Jerry Moran (R 1st) ---
Todd Tiahrt (R 4th) ---
Kentucky
Geoff Davis (R 4th) ---
Louisiana
William Jefferson (D 2nd) ---
Maryland
Wayne Gilchrest (R 1st) ---
Steny Hoyer (D 5th) ---
Roscoe Bartlett (R 6th) ---
Elijah Cummings (D 7th) ---
Massachusetts
Stephen Lynch (D 9th) ---
Michigan
Dave Camp (R 4th) ---
Tim Walberg (R 7th) ---
Michael Rogers (R 8th) ---
Joseph Knollenberg (R 9th) ---
Candice Miller (R 10th) ---
Carolyn Kilpatrick (D 13th) ---
John Conyers (D 14th) ---
John Dingell (D 15th) ---
Minnesota
John Kline (R 2nd) ---
Michele Bachmann (R 6th) ---
Missouri
Todd Akin (R 2nd) ---
Roy Blunt (R 7th) ---
Kenny Hulshof (R 9th) ---
Montana
Dennis Rehberg (R At-Large) ---
Nebraska
Adrian Smith (R 3rd) ---
Nevada
Dean Heller (R 2nd) ---
Jon Porter (R 3rd) ---
New Hampshire
Paul Hodes (D 2nd) ---
New Jersey
Scott Garrett (R 5th) ---
Frank Pallone (D 6th) ---
New Mexico
Tom Udall (D 3rd) ---
New York
Gregory Meeks (D 6th) ---
Yvette Clarke (D 11th) ---
Maurice Hinchey (D 22nd) ---
James Walsh (R 25th) ---
Thomas Reynolds (R 26th) ---
North Carolina
Virginia Foxx (R 5th) ---
Ohio
Michael Turner (R 3rd) ---
Jim Jordan (R 4th) ---
Paul Gillmor (R 5th) ---
Charlie Wilson (D 6th) ---
David Hobson (R 7th) ---
John Boehner (R 8th) ---
Stephanie Jones (D 11th) ---
Steven LaTourette (R 14th) ---
Ralph Regula (R 16th) ---
Oklahoma
Tom Cole (R 4th) ---
Pennsylvania
Chaka Fattah (D 2nd) ---
Bill Shuster (R 9th) ---
Allyson Schwartz (D 13th) ---
Joseph Pitts (R 16th) ---
Puerto Rico
Luis Fortuno (R At-Large) ---
South Carolina
J. Gresham Barrett (R 3rd) ---
Bob Inglis (R 4th) ---
John Spratt (D 5th) ---
James Clyburn (D 6th) ---
Tennessee
John Duncan (R 2nd) ---
Zach Wamp (R 3rd) ---
Lincoln Davis (D 4th) ---
Jim Cooper (D 5th) ---
John Tanner (D 8th) ---
Texas
Louie Gohmert (R 1st) ---
Ted Poe (R 2nd) ---
Sam Johnson (R 3rd) ---
Ralph Hall (R 4th) ---
Jeb Hensarling (R 5th) ---
Joe Barton (R 6th) ---
John Culberson (R 7th) ---
Kevin Brady (R 8th) ---
Kay Granger (R 12th) ---
William Thornberry (R 13th) ---
Ron Paul (R 14th) ---
Chet Edwards (D 17th) ---
Sheila Jackson Lee (D 18th) ---
Randy Neugebauer (R 19th) ---
Lamar Smith (R 21st) ---
Kenny Marchant (R 24th) ---
Michael Burgess (R 26th) ---
Henry Cuellar (D 28th) ---
Eddie Bernice Johnson (D 30th) ---
Virgin Islands
Donna Christensen (D At-Large) ---
Virginia
Jo Ann Davis (R 1st) ---
Bobby Scott (D 3rd) ---
Randy Forbes (R 4th) ---
Bob Goodlatte (R 6th) ---
Thomas Davis (R 11th) ---
Washington
Doc Hastings (R 4th) ---
Norman Dicks (D 6th) ---
West Virginia
Alan Mollohan (D 1st) ---
Wisconsin
Paul Ryan (R 1st) ---
Gwen Moore (D 4th) ---
Thomas Petri (R 6th) ---
David Obey (D 7th) ---
Steve Kagen (D 8th) ---

I'm not taking the month of August off . Even though Bush, the U.S. Congress and the Iraqi government are.