Jeannie, thanks for telling me about this site...Lisag

Hopefully in time more pals will find this site !! I read all the pals forums and contribute to some of them.
Whats important is that we have as many sources out there to connect old and new pals, as well as spread the word about the mnds.
A cure is needed, and ALS....Lou Gerigs....PLS.....MND need to be spoken by all, with the same understanding and frequency as cancer, stroke and heart attack !!!

Your welcome Lisa, welcome aboard

Jeannie,
I put up a link on ALSTDFs forum...
Someone posted over there wondering about old braintalk..and was having problems registering..I tried to help with the problem..
And told them many members of old braintalk have chosen to stay here as well...and that at first this was a safehaven for displace Braintalkers but now that its own forum with new adminstrators and mods...
I posted a link so they can directly to Braintalk2 .Lisa

Thanks Lisa

I see mods have closed many threads and removed posts over at bt1... one post in particular by john lester where he stated the google ads generated 99% of the funds for the site....It was only deleted after a member confronted him.

so if google ads generated 99% of the funds for the site, what and where are the donations being spent on

Jeans,
Invite eltacoDave. He'll livin things up here

Please People - don't invite Dave from EP to join and ruin every site. I hope there is going to be one left we can use that he has not contaminated.

Hi JoelC,
It's very nice to me meet you...
I for one am glad to see a place where I can find some old friends and meet some new ones..and have open discusssions on a variety of ALS issues..
I don't know all of what happens on other sites..but my personal point of view.is...all of us have unique personalities and opinions.. and some of us tend to more stubborn than others...but we are all on the same side here..ALS is the enemy..not each other...
Disagreements are going to happen..but "hopefully " we can still be kind to one another even when we do disagree..
Dave..good to see you are hanging on there..Lisa

we can dance

John Lester was asked to start Braintalk by his boss at MGH and it grew into what it was by the fact it was unique and the only one available for the neurological community.

There were no moderators and when asked if they were needed and wanted a lot of people jumped on the bandwagon and bellowed yes.

So moderators they got and the fun ended and the troubles began. They were volunteers from the site and you could sit back and see who they were and what they were about and as moderators they were a weird group. So some left and some remained and formed their own little clique. then they began to find it hard to be quiet and not let people know who they were . they lost their anonymity as moderators and also lost their ability to be members at large.

So they were stuck in a quandary and lo and behold one member stood out from the rest in his flattery and gratuitous attitude and writings to John and you could see where that was heading. Well lo and behold he soon turned into an 'administer' of all things.

That then was the ending of Braintalk as we had all known it. it became a dictatorship and all contact with John was lost to anyone who dared to voice a nay.

It began with just authoritarian notices and then closing of posts and when that didn't suffice this mans ego the banning began.

Then it was shut up and say yes mam and yes sir or leave. I chose to stay but it didn't do me any good.

They tore down the Berlin wall to illustrat4e freedom and now are building a wall between the United States and Mexico but the wall between the members and their friends on Braintalk was the interim project.

Then John took on the task of bringing people who have Aspergers and Cerebral Palsy into the main fold of the WWW and it has garnered the majority his attention and time. Don't get me wrong that project is the utmost admirable thing that Braintalk brought about.

But the members were left in the hands of a fanatic.

Now John has put in another 'administer' in our very own Mike Weins and while he seems to be more approachable I can't believe he will be effective unless he has John's authority over David.

That will be interesting to watch and see.

I have completely gone off the main subject here of winning new members to this community. It is not right to go to other sites and entice them away so where do we go for new members.

We have to devise a method or plan to bring them in.

Please give me some ideas. Cals and pals only please as this is their site and they are the ones to decide.

I am just offering to help them in whatever they want to do.

Won't be back for a few days as I am going to be out of town but I will return Monday night for the hundreds and hundreds of answers this brings. lol


Here ils one thought what if we have an ebay sale for Alstdf