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Member
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Join Date: Oct 2020
Posts: 180
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Member
Join Date: Oct 2020
Posts: 180
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Hello glad you were able to share such detail. I just remembered my closest friend's journey with her mom as she declined and they made many trips to ER only to be sent home. That’s here in Iowa. After 3 years of that they took her to a University hospital in Texas and her Lymphoma was diagnosed. Locally I was just told by my long time neurologist that has always given me Mestinon that I don’t have MG. But about 15 months ago Pulmonologist at Mayo Clinic showed my last 2 chest X-rays and said My paralysis is getting worse fast affecting lungs and it may be ALS. Wow major whip lash! My Mestinon is a Mira le to me. It gets me across the room and sometimes out the door. Oh and wow it allows me to BREATH! Before steroid shots recently it was only thing that helped me breath. Sculptor 44
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03-05-2022, 02:48 PM
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