ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.

 
 
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Old 02-01-2008, 11:12 AM #9
lisag lisag is offline
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Join Date: Oct 2006
Posts: 186
15 yr Member
lisag lisag is offline
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Join Date: Oct 2006
Posts: 186
15 yr Member
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Shelia,
So good to o hear from you -I think about you often .

You are right ALS is such a weird disease, it affects people in such a different order.

Gary has to actually fight smiling when he is in the process of typing. As his smiles can make him mistype.

He can smile after he types , but he has to use a solemn face and be relatively relaxed when typing .

Gary's face is the only place where he has dectable sgnals anymore. But we have 3 usable spots on his face , either cheek and the forehead. His left cheek seems to work the absolute best in his case.

However in some PALS , they have used it on the arms , inner thigh , etc. The place where the best signal is found varies person to person , as the disease progresses in different areas first in different people.

Gary is doing absolutely wonderful ,it has almost been a full year since he has been hospitalized with a pneumonia .( I'm knocking on wood fast after sayng that ) . Lisa

Last edited by lisag; 02-01-2008 at 11:36 AM.
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