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ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB. |
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#1 | ||
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Junior Member
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Here are my sx. could you please give me some advice.
Sx started in November: Tingly, numbness, pins and needles, burning, muscle twitches, cog fog, memory problems, myclonic jerks(sp), internal shaking, vibrating, dizziness. Sx have been coming and going for months now. I have had an EEG & SSEP & MRI which are all normal. I am having an EMG next week. I was just wondering if my sx match ALS. I'm scared and dont know what is going on with me. I was leaning toward MS but no test point that way. Thank you for you opinioin. Mindy |
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#2 | ||
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Junior Member
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I’d go to a reputable chiropractor. It might be a pinched nerve.
Bill |
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#3 | ||
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Junior Member
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Thank you for your reply. I dont know whats wrong with me. My sx could be anything.
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#4 | ||
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Grand Magnate
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I would also get a full endocrine work-up. Sometimes thyroid, adrenal or sex hormone deficiencies can manifest similarly. Also make sure to get your iron and b12 and folate checked. B12 can also have similar sumptoms.
Try not to let the fear get the best of you. And don't jump to conclusions. Fear will make anything seem worse. Keep trying to figure it out with a doc's help. ![]() |
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#5 | |||
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Member
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I too was terrified when I had symptoms that added up to MND...I struggled for a very long time...muscle weakness, fatigue, muscle twitching, burning, loss of balance, slow mentation, difficulty swallowing, drueling, hoarse voice and more.
It was a multi faceted disease/symptoms, vit/min defieincy, mostly B12 deficiency causing most of these symptoms. Once I began taking the proper form of it, Methylcobalamin with urging of Rose here on Vit/Min Def forum.... once I began taking the Methyl B12 I began to heal... its been 4 years now, I guess I wouldn't be around now if it had been a MND...but then I wonder because I still struggle with the same symptoms only not anywhere near as bad. But there are times I get frightened. Life on Planet earth is never fair, but I'm not the only person suffering. There are many, much much worse than me and there are many children who'se lives are cut short and suffer much worse than many of us. Life is just too hard and unfair for a lot of people. I only look to the Lord to hold me till this trial is over or my body laid to rest till He returns for all of us! I'm sorry you're suffering...I know exactly how you feel. I'm glad I didn't carry thru with my plans for ending my life...I was SO terrified and scared, but is natural way to feel when your life isn't whole as it should be. Blessings, CryTears
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No well behaved woman ever made history! I am forced to take one day at a time....God won't let me fast foward through the bad times . Still life is worth living no matter how bad my pain is....there will be a better day....I tell myself this often, and the sun breaks through the clouds...and I smile! . |
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#6 | |||
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Member
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Mindymindymindy! I don't know much about ALS, but I do have the MS. And your symptoms mirror mine. A few keys at this point; try to keep stress at bay and be patient. Many people are in the "limbo". Waiting for the docs and science to pin down a diagnosis. Please continue posting because... You are not alone. ![]() You are one of us. ![]() And we are here to help. ![]()
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You can't have everything. Where would you put it? -Steven Wright Once you change your mind, you can change your life. -Della Reese . Always outnumbered... Never outgunned . *I* am the MonSter that MS fears |
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#7 | |||
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Elder
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These symptoms also sound like RSD/CRPS.... many symptoms mimic other disease and syndromes.... Did you have an injury??? Not that it matters... RSD can start for no known reason.
I wish you the best and hope you find an answer soon!!! ![]() Abbie Quote:
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My avatar pic is my beautiful niece Ashley! . Rest in Peace 3/8/90 ~~ 4/2/12
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