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| ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB. |
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08-13-2008, 03:18 PM
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A growing group of ALS patients, families and friends are organizing the fight for the right to Iplex. This FDA approved drug is blocked by a patent settlement agreement. Please sign the petition and ask all of your friends and family members to sign this. We are going to take this petition to the media, the corporate executives at Tercica/Ipsen & Genentech/Roche, and to our government officials. Please help us in this battle to obtain Iplex for ALL patients.
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08-14-2008, 06:43 AM
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In Remembrance
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thanks... im on it
__________________
. ALS/MND Registry . |
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08-15-2008, 11:18 AM
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I have recevied some good information from the ALS mailing list I have joined. There have been some members in with the Italian government, and are using other avenues to find out how to make IPLEX available to everyone else. I'll post a bit of the correspondence from the mailing list when I have a chance.
Good luck to all, and I'm glad my petition has brought this very important issue to the front line. It's time that the people take the greed out of corporate America. John |
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Iplex for ALS patients
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