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ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB. |
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Hi all,
I am a visitor from the Parkinson's forum here on Neurotalk. One of our members was kind enough to inform us about Tercica and how they are blocking the great wonder drug IPLEX due to a so-called patent infringment against the Insmed. Anyway here is an excerpt from our member Thelma's post that I copied into a petition I've setup to deliver to Tercica in February 2009. I'm hoping to get 10,000 signatures against them, and show that we need this medication and that they are blocking something for a monetary reason rather than allowing something to go through for the good of all. Negotiated settlement between Insmed Corporation and Tercica(and Tercica's associated licensing companies Genentech and Cephalon) has devastating impact on ALS Patients worldwide. Iplex, (an IGF-1 medication with an IGF-3 binding protein component), produced by Insmed, has been taken off the market. This drug, given by injection once daily, is the first to show benefit for ALS, HIV-Aids, Myotonic Muscular Dystrophy and burn victims. Because of a patent infringement, the settlement winner Tercica, is pulling all Iplex off the market and replacing it with their own inferior product, Increlex, which offers little or no benefit for these patients. Even at an astronomical cost to patients, ( $9500 a month) the demand is great, the supply unavailable. In fact, Tercica is recommending that all remaining supplies be destroyed rather than providing it to those in dire need. The bottom line is money over life-the obvious 21st century mantra for the pharmaceutical industry. http://www.thepetitionsite.com/petition/127840940 Good luck to all here and best regards from the PD forum. John |
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"Thanks for this!" says: | BobbyB (08-14-2008) |
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