ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.

 
 
Thread Tools Display Modes
Prev Previous Post   Next Post Next
Old 08-12-2008, 09:19 AM #1
jcitron jcitron is offline
Member
 
Join Date: Sep 2007
Location: Haverhill, MA
Posts: 480
15 yr Member
jcitron jcitron is offline
Member
 
Join Date: Sep 2007
Location: Haverhill, MA
Posts: 480
15 yr Member
Thumbs up I have a petition setup for IPLEX

Hi all,

I am a visitor from the Parkinson's forum here on Neurotalk. One of our members was kind enough to inform us about Tercica and how they are blocking the great wonder drug IPLEX due to a so-called patent infringment against the Insmed.

Anyway here is an excerpt from our member Thelma's post that I copied into a petition I've setup to deliver to Tercica in February 2009. I'm hoping to get 10,000 signatures against them, and show that we need this medication and that they are blocking something for a monetary reason rather than allowing something to go through for the good of all.


Negotiated settlement between Insmed Corporation and Tercica(and Tercica's associated licensing companies Genentech and Cephalon) has devastating impact on ALS Patients worldwide. Iplex, (an IGF-1 medication with an IGF-3 binding protein component), produced by Insmed, has been taken off the market. This drug, given by injection once daily, is the first to show benefit for ALS, HIV-Aids, Myotonic Muscular Dystrophy and burn victims. Because of a patent infringement, the settlement winner Tercica, is pulling all Iplex off the market and replacing it with their own inferior product, Increlex, which offers little or no benefit for these patients. Even at an astronomical cost to patients, ( $9500 a month) the demand is great, the supply unavailable. In fact, Tercica is recommending that all remaining supplies be destroyed rather than providing it to those in dire need. The bottom line is money over life-the obvious 21st century mantra for the pharmaceutical industry.

http://www.thepetitionsite.com/petition/127840940

Good luck to all here and best regards from the PD forum.

John
jcitron is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
BobbyB (08-14-2008)
 

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
PD stamp - please sign the petition jeanb Parkinson's Disease 2 08-04-2008 05:08 PM
Petition... who moi Community & Forum Feedback 38 06-28-2008 03:50 PM
SSA Disability Insurance Petition mom23angels Multiple Sclerosis 1 06-04-2008 07:48 AM
Insmed CEO highlights FDA approved IPLEX Mid Ohio Brian ALS News & Research 0 10-05-2007 06:48 PM


All times are GMT -5. The time now is 11:22 PM.


Powered by vBulletin • Copyright ©2000 - 2025, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise (Lite) - vBulletin Mods & Addons Copyright © 2025 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.