hola el magaro, espera que todo sea bueno con ti. apenas decirnos sobre se aquí. cómo estás haciendo. es justo dejó el mundo conocernos aquí está esperando la curación. decirnos que seas, de donde tu, cuánto tiempo has tenido als/mnd. gracias BOBBY


nombre de donde tu cuando eras dx/als/mnd cómo el tu hacer y qué el tu hacer drogas, sillón de ruedas, respiradero, clavija él tu del níquel opinión tan qué deseas por favor

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ROLLCALL

tell us your name
where your from
when you were dx
anything you want
tell us how your doing
what your doing

John 56,
Symptoms started March 04, dx August 05. limb onset arms and weak neck, can still walk abit. Live in Melbourne Australia.
Take each day and live the best you can.

Jeannie age 28
Limb Onset June 2000
Dxed July 2001
UK

My blog http://jeannie-world.blogspot.com/

My website http://uk.geocities.com/jeannie_25als@btinternet.com/

ALS/MND CHATROOM http://client1.sigmachat.com/sc.pl?id=144320

MarkNH
New Hampshire
First Sx November 2002
Diagnosed March 2003
Severe leg muscle atrophy. Manual w/c and crutches.
Fasc's overall including tongue.
Still working, driving, living differently but fully!

Hello I'm Lisag wife of Gary..
Diagnosed 1999 with bulbar onset ALS
Ventilator dependent since 2004 but can come off for showers etc..

first symptoms-- May 2001
lots of tests
three different neurologists
blah blah blah -- yada yada yada
wheelchair -- January 2004
bi pap-- March 2005
today -- great family and friends, things could be worse, on the whole my life -- o-- meter is still registering on the plus side.

tucker, Los Angeles CA
Limb onset (all), Symptoms 2004, dx. 2/2005
i have Stephen Hawking's Desease (everybody wants to call it lou gehrig's but lets face it - he's hardly a good role model - being dead and all)*my limbs aren't that hot - sadly my clever little hands went first - and since i already made my living on the computer,* i saw which way the wind was blowing and got iListen voice recognition,* smartnav headpointing gear and - keystrokes.* Voila!* back to work!* Now if only i could do handspring again!
big love to you all!

Hi, my name is Mark Sullivan, and I was dx'd with ALS last March. I knew what I had for several months, but didn't have the guts to face up to it.

Does anyone here remember Kevin or Kassie Sullivan from another chat room. I think it was Steve's, but not sure.

Kevin was my dad, and he passed away, but he also had ALS. I know my mom got to know a lot of great people but I just didn't pay enough attention at the time.

I'm glad I found this place. I looked for the other chat room, but couldn't find it.

See you around.

Mark

WELCOME MARK
I KNOW ALOT OF FOLKS ARE STILL AROUND FROM STEVE'S CHATROOM THAT REMEMBER YOUR FAMILY VERY WELL AND WILL BE HAPPY FOR THE UPDATES. SORRY TO HEAR YOU HAVE ALS.. HOW ARE THE GIRLS DOING AND THE LITTLE ONE(SORRY FORGOT HIS NAME)?

Have had all the tests for MS and no go then went to have an EMG and low and behold the dr giving it asked if I ever heard of als well of course I had as my first nuero mentioned it speech is slurred from time to time and both thumbs are starting to atrophy still have grip just not good like it was. I intend to try and fight with all I have and hope my doc realizes that he needs to help if not another doctor will be here, I have heard so much and really know nothing much til I see him tomorrow but I am ready to hear it and get started on the work I need to do Hope everyone here is having the quality they need