Tony,

I have been a member of internet forums for 6 years.

I am a muscle twitcher, so I did a lot of reading and posting in the Neuromuscular forum where all the twitchers hung out. I can tell you that in 6 years I have seen literally hundreds of people with muscle twitches (fasiculations) who have posted about fears, expecially ALS fears.

But in 6 years and hundreds of people who twitch I have never seen a twitcher get diagnosed with ALS.

I have seen twitchers get diagnosed with anxiety, BFS, autoimmune problems, thyroid problems, lyme disease, other infections, mitochondrial diseases, endocrine/adrenal problems, etc... I have seen a wide array of people who twitch who go on to get diagnosed with a wide array of things - but NEVER did anyone get diagnosed with ALS.

I twitch. Everyday. At one point or another, every single muscle has twitched. I have had muscle twitches in places and I didn't even know there were muscles there until they twitched

I have ben twitching everyday for over 6 years. I don't have ALS. I have anxiety, fibromyalgia and undifferentiated connective tissue disease and a few other things that are minor (I will give you the whole list if you want)... I don't have ALS. I don't have any worries about ALS. My doctors do nto suspect ALS.

I twitch. It's annoying. When it first started 6+ years ago it was scary and creepy and weird. Now I barely notice when my muscles twitch everyday. I got used to it, like you get used to wearing a new pair of shoes - at some point the new shoes stop hurting your feet and at some point the muscle twitches stop causing fear and worry.

Try to relax. Try to trust your doctors. Try to ignore and forget the twitches. Try to live your life to the fullest everyday. Take baby steps if you have to - but at least give it a try.... trust me, it's worth it

Take care,
Liz