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ALS For support and discussion of Amyotrophic lateral sclerosis (ALS), also referred to as "Lou Gehrig's Disease." In memory of BobbyB.

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In Remembrance of BobbyB

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Old 06-08-2009, 02:27 PM #1
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Bless Bobby, Lord.
In spite of ALS, he made a difference in many lives and will be sadly missed.
__________________
I know the sound the river makes, by dawn, by night, by day. But can it stay me through tomorrows that find me far away?


.
I have this mental picture in my mind of you all, shaking bones and bells and charms, muttering prayers and voodoo curses, dancing around in a circle of salt, with leetle glasses and tiny bottles of cheer in the middle...myyyyyy friends!

diagnosed 09/03/2004
scheduled to start Tysabri 03/05
Tysabri withdrawn from market 02/28/05
Copaxone 05/05-12/06
Tysabri returned to market 06/05/06
Found a new neuro 04/07
Tysabri 05/25/07-present
Medical Marijuana legally 12/03/09
.

Negative for JC virus antibodies!
.

I'm doing alright and making good grades,
The future's so bright, I gotta wear shades!
.
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"Thanks for this!" says:
Chemar (06-09-2009)
Old 06-09-2009, 08:05 AM #2
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our thanks to DocJohn for dedicating the ALS Forum at NeuroTalk "In Memory of BobbyB"

we miss you so very much Bobby but your light shines on here in your many posts
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~Chemar~


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"Thanks for this!" says:
Abbie (06-09-2009), Alffe (06-09-2009), DejaVu (05-24-2010), Doody (06-16-2009), Koala77 (06-09-2009), Lara (06-09-2009), mrsD (06-10-2009), olsen (07-20-2009), soxmom (06-09-2009)
Old 12-19-2010, 11:53 AM #3
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Default I just found out..
I haven't been on here in awhile, but knew Bobby from here, and another site. He's done so much for the ALS community. My mother had bulbar onset ALS and Bobby helped me a great bit in understanding the disease. I will miss him very much. So sorry to hear.
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"Thanks for this!" says:
Abbie (12-20-2010), Chemar (12-20-2010)
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