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Old 09-21-2006, 10:16 PM #6
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trekker trekker is offline
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Join Date: Sep 2006
Posts: 103
15 yr Member
trekker trekker is offline
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Join Date: Sep 2006
Posts: 103
15 yr Member
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LOL Patience! The only reason I appear to have patience is I'm too gosh darn tired to react with any speed. I'm actually very impatient with "the system", drives me nuts. I'm so tired of dealing with uncaring beaurocrats, poorly trained techs, and companies that will only deal with us long enough to get paid and then we are invisible to them.

Wisdom? Most days I just simply put on foot in front of the other. The brain is barely functioning on those days

Care. Ok I'll give you that one. Although part of me just wants to prove to "the powers that be" that if you do what is [U]right[U] it is actually cheaper to care for a disabled person. Hubby is stable because for the last 22 years I have worked hard and trained the people who work for us properly. No one expected DH to live this long and be in such good physical shape...e.g. in those 22 years the only skin breakdowns he has had were caused by the "care" he got while in the hospital. If he's in there for any length of time he comes home with a breakdown...and I stay with him 24/7 when he's there so I can direct his daily care....actually have a hard time getting aides to spend anymore than 15 minutes in his room. They fight me on his meds, his care, his ability to understand, what his needs are and I always have to fight for a special mattress...they always want to wait until he gets worse because he's not being supported properly or until he breaks down. They'd rather have the already overburdened nurses come in to turn him every two hours than to get the right mattress....stupid, wasteful, and most of all hard on DH.

Sorry this turned into a rant but I'm having trouble getting tires for DH's wheelchair..why? because we kept the chair longer than they like and no ones knows what size tires we need...and the wheelchair company refuses to co-operate. How dare we not buy a new chair that we don't need! LOL I should start a thread...what's the stupidest thing that you've had to deal with in the system?
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