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Old 07-12-2011, 10:26 AM #1
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So have a Cavernous Carotid Aneurysm. They won't do surgery until it hits 5mm so they are going to monitor it for now. I will let everyone know how things go. If anyone has any advice or any information on these types of aneurysms please let me know. It would really help.
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Old 07-12-2011, 08:26 PM #2
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Hi, I have no words of wisdom, nor any advise but just wanted to let you know that I was recently diagnosed with 2 carotid ophthalmic aneurysms. I just had 1, which was almost 9mm in size, repaired with a new procedure called a pipeline stent. The other will be monitored as it was only 2 mm. From what I understand, this stent is used particularly for aneurysms in the internal carotid artery, which is where mine are, near the optic nerve. MY surgery was on June 8, 2011 and I am back to work as of last week. I do have extreme fatigue, a lot of emotional issues I'm dealing with, headaches, memory loss and a few other things. I don't know much about the type of aneurysm that you have, but I wish you well and, if you need support, please feel free to contact me.
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Old 11-04-2011, 07:56 AM #3
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Quote:
Originally Posted by DigitalAngel04 View Post
So have a Cavernous Carotid Aneurysm. They won't do surgery until it hits 5mm so they are going to monitor it for now. I will let everyone know how things go. If anyone has any advice or any information on these types of aneurysms please let me know. It would really help.
I had the same kind and they did clip it off as it started to bleed and then wouldn't stop. Now I have als not sure if they are related or not Good Luck adn my recovery time was about 4 to 6 weeks by 6 weeks I was back to doing everything I wanted
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Old 12-26-2011, 08:25 PM #4
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Well, one big problem is living in Nebraska. Where is the aneurysm located? I had a fusiform aneurysm in my Basilar artery and a second one right above it near the Circle of (whatchoo talking about) Willis. The first one was treated with a stent through vascular surgery. (going in through the femoral artery in my thigh and snaking up to it.) When the second was discovered they went in, did a flow reversal, and set a clip. (craniotomy)

I went to the Barrow Neurological Institute in Phoenix. I was told the best place for brain injuries. (I asked "getting them or fixing them?") Here are some very good texts, quick reads and written for the non science major. (Microbiology undergrad for me)

"Brain Aneurysm" by Robert Spetzler. (one of the best neurosurgeons in the world and they guy who had his hands in my head.) Go look at the group at bnaneuro.net) and "Brain Aneurysms and Vascular Malformations, a Guide for Patients and families." by Dr. Eric Nussbaum.

You should also visit Brain Injury Association of America (biausa.org) and check out some of their resources. The local chapter for Nebraska is http://www.biane.org I cannot stress enough the support and resources these organizations offer. Check this stuff out and check in here. Mine are still growing despite being stented and clipped. They are monitoring them and I am still active. (Nationally ranked wheelchair fencer) How do you fence with a wheelchair? Shouldn't you use a sword? That's another story that would eat up all your bandwidth. I tell people to not make me angry because I have an exploding head and I'm not afraid to use it. (Ha, a brand new audience for my corny jokes)
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2 brain sugeries (aneurysms) 5 strokes and 5 seizures in the last 10 years.
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ginnie (12-27-2011)
Old 01-13-2012, 10:13 AM #5
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Hang in there Kyrie. I found out I have a 4 mm brain aneurysm behind my left eye. This was the week of Christmas. A week ago I was told I also have Huntington's disease. I am more concerned about that for some reason. I many other problems ongoing for almost two years now. Mine was an incidental finding so I was lucky. I am scheduled the 18th for surgery at Mayo in Jacksonville.

There is another surgery called a pipeling procedure that I will be having. You may want to check into this as well. It can also be coupled with coiling. It is one to two nights in hospital, one more day in area. I may stay longer due to the 650 mile drive.

I have great family support. I have found they need support as well. We don't need to forgert the worries of those who love us.

Good Luck.

Mike
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