[Jim091866]

I came across their site. Scary stuff!! Makes you wonder what we're doing to ourselves.

[dsiebenh]

I don't have PD (I have MS/Lyme) but I was on Sinemet for 9 years. It took almost a year overall but I was able to transition from Sinemet to Mirapex and then to other anti spasmodics for my legs.

Now hopefully my dopamine system can recover.

[Fiona]

Yes, you are right, it is scary stuff. These drugs are huge and we haven't figured out how to cope with them well yet.

But beware of the "nocebo" effect, too. I feel that nobody, no matter how informed, has the power to dictate the course my body will take and the healing possible, except for that that I allow. SO despite very informed, yes, but dire predictions, it doesn't mean that you can't heal, even if you are on medication. And I question the wisdom of descriptions like that touching a person with PD feels like snakes are crawling under their skin - I mean, a little negative? Especially considering how especially vulnerable we are to judgment, and negativity - out positive mental status is way more important than even the meds.

A previous thread that is very good counter-reading to Once Upon A Pill:
[URL="http://neurotalk.psychcentral.com/showthread.php?t=48707&highlight=Doidge"[/URL]