Does anyone with ACM also have Pseudotumor Cerebri? I was dx'd with PTC in 2005 and then dx'd with ACM in 2006. I'm just wondering if anyone else has experience with these symptoms. I can tell when my ICP (Intercranial Pressure) is high. I can feel it in my head and hear the "swooshing" to the beat of my heart. There is so much pressure and my face feels tight and part of it is numb off an on. It's torture. I've been in the middle of this episode for 3 days. Almost wen to hospital last night. It' s been a horrible few months for me. If it's not one thing it's another. It's getting really frustrating feeling like there is always something hurting. Sometimes I wish if I HAD to have an ailment that it could be something people understood and something that when you look at me you could see. It's hard because people look at me and probably think that I'm nuts. I would think the same thing! I'm losing my strength to deal with these things. Really, I am. Anyone with some insightful words would be helpful.

I was diagnosed with PTC in 1997, and nearly 5 years later I was diagnosed with ACM.
I have a PTC headache everyday of my life. As a matter of fact, I don't recall what it felt like before I had a constant headache.
I suffered for a whole year with ACM symptoms, then they went away.
They returned in the spring of last year, right after I finished losing 120 pounds ( through diet and exercise). I've spent nearly 1 solid year now suffering from extreme fatigue, horrible face pain, neck,shoulder,head and lower back pain. All of this has caused me to suffer from anxiety and panic attacks on a daily basis. I'm hoping the ACM goes dormant again. I can handle the PTC, but the ACM symptoms are unbearable!