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04-04-2012, 11:25 PM | #3 | ||
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I have been comPletely active for a good portion of my life and on numerous Medications to try and help the headaches and migraines with no luck. On May 27, 2010 I experienced my first complete disabling migraine. It was my daughters 4 birthday and party and I hardly remember it. I spent most of the day throwing up. Between then and August my pcp had me on different medications, I went to chiropractors and tried all kinds Of things. I finally gave up, took matters into my own hands and decided to find neurologist since my pcp would not even send me for a simple migraine. My headaches were so bad that I lost feeling in my hands, had tingling in my arms, the most awful pain/ pressure in the back of my head/ neck that I would spend most days throwing up and crying while trying to take care I my 9 month old and working. I would literally roll around on my bed, floor or couch throwing myself in positions hoping the massive amounts of pain would go away. My neurologist nailed in on the head after talking with me for five minutes. I had a CT scan later that afternoon( Monday) by Wednesday I was back in is his office with confirmation of ACM 1. Two weeks later I was going in to surgery. I had the decompression surgery, and was out of work for 6 weeks, couldn't drive for a month, and had to have someone stay with me since my husband worked nights and I had two children to take care of. My first surgery was on August 26, 2010. 2nd surgery due to a leak in my dura and csf building up in my soft tissues, was on November 4th. After my 2nd surgery I thought I was in the clear! I felt awesome! Not even close to the difficulty in recovery as the 1st surgery! Even tho the incision was longer and they had to shave more of my head I thought I was finally going to be pain free. Not even close. 2 weeks later to the day almost I was admitted back into the hospital. I had to have a spinal tap done to test my pressure, which they had already done during my 2nd surgery, which resulted in a lumbar drain. A normal range of csf pressure is 12-15. Time of surgery mine was at about a 17. When they did my tap to test the pressure I was at a 26. I went in for surgery the next afternoon. When They first put the shunt in they set it at a 12. After two more changes I am now at a 7. Almost 2 years later I am still not even close back to normal. I am a caffeine junkie, or my headaches come back. My neck , back and shoulders are constantly weak and aching. I would live like this for the rest of my life over the pain I had with those headaches before. My neurosurgeon and the hospital were absolutely fantastic! I had an amazing team Of doctors and nurses that were over the top fantastic! I have been having worse pain Over the last week and am debating on going back to see my ns. I would highly recommend the csf shunt to reliever the build of, and unfortunately the amount of trauma your body goes thru with all of these surgeries, you will never feel " normal " again. Prayers headed your way so that they help you sooner rather than later. Hope my story helps a little in some way. |
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