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Autoimmune Diseases For Hashimoto’s thyroiditis (underactive thyroid), Graves’ disease (overactive thyroid), Lupus, Crohn's disease, all types of arthritis, and all other autoimmune diseases. [Multiple sclerosis (MS) and Myasthenia Gravis (MG) have their own forums below.] |
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02-28-2010, 04:52 PM | #1 | |||
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Junior Member
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In the summer of 2008 I had what I refer to as attack on my way home from work. I live in Atlanta and drove 35 miles one way to work. On the way home from work I had sudden a spacial disorientation like I was loosing total control. A vertigo type attack but not exactly. It was very troubling and it seemed like everything was moving in slow motion and my equilibrium was off.
I was basically bedridden for months and only went out to go to doctors appts. I was sent to a cardiologist, eye doctor and all test came back normal. I had a cat scan, two MRI's and physical therapy. Was initially diagnosed with BBPV, Vestibular Neurtinitus (sp) and then finally Migraine Associated Vertigo. Within months of this happening I started having terrible pains in my legs and knees to the point it was painful to walk. They did vascular studies, xrays and said they found nothing wrong. Then I started having what felt like running water down my left leg. Then I started to get numbness and tingling in my arms and weakness in my left arm. Muscle twitching all over. Within weeks I started having a strong pulsation in my left ear that stayed for several months and then went away but will return if I put an ice pack on the back of my neck. Then the stomach issues started, gurgling, burning pain on the skin and a vibration that is so strong at night I feel like it is going to jump out of my insides. It happens every night. Somewhere in the midst of all of this I began to have an internal tremor that moves from place to place within my body. Most times it seems to be centered within my abdomen, back and upper back area. I have stop growing hair on my legs, my feet are very cold all the time and I have recently starting having issues with both big toes being red with pain. And there are other issues, it seems to have some correlation to eating the waviness/dizziness.24/7..not what I eat but as soon as i put something in my mouth. The facial sensations are very odd and seem to intensify with eating thus making the other symptom worse. So far I have been to three neurologist, two cardiologist, eye doctor, ENT, PCP, two gastro doctors. I have had the following test. Brain CT Scan Three MRI brain MRI NEck MRI LOWER BACK CT Scan Abdomen CT Scan Chest Endoscope VENG EAR TEST Balance Test Caloric Testing Hearing Test Ultra Sound Leg Ultra Sound Abdomen Everything comes back normal. I went to podiatrist and she is having some additional vascular test done, plus she wants me to have some nerve studies and thinks I need to see a Rheumatologist.(sp) I have been very sick for almost two years and have lost my life as I once knew it, I need some direction. If anyone has any suggestions or thoughts about where I need to go it would be appreciated. Life is pretty tough these days, one day at a time is all I can do for now. Would love some answers. |
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