Hi, TeaTime! Welcome! SFN=small fiber neuropathy. I'm sorry you've had to deal with all of this autoimmune stuff for so long. I know it's a real pain in the ***. Trying to find a new doctor makes it even more difficult. Hopefully, you will find one you like in your new area. I'm not sure of any specific test for MCTD, but you may be correct. All I know is that all of the blood tests came back normal. Maybe that's why the rheumy said no to MCTD.
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Originally Posted by Teatime
What is "SFN"? I've lived in autoimmune-land for 8 years now but I'm not familiar with that abbreviation.
Actually, MCTD is one of those rare autoimmunes that's rather cut and dried. There's a specific test for it. (RNP, I believe?) I don't think that things morph into MCTD -- you either have it or you don't.
That said, there are so many of these diseases that are related and overlaps are common. I had a great rheumatologist when I first got sick but since I moved to a new city, I haven't gotten good rheumatology care. The rheum. in my new city was awful -- so awful that many people stopped going to him and he moved away!
I had all of my records sent to me from my former, excellent rheumy and I'm now having to do my own detective work when things get worse. Luckily, I have an excellent internist who is willing to go above and beyond her pay grade to help!
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02-23-2012, 12:32 PM
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