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Autoimmune Diseases For Hashimoto’s thyroiditis (underactive thyroid), Graves’ disease (overactive thyroid), Lupus, Crohn's disease, all types of arthritis, and all other autoimmune diseases. [Multiple sclerosis (MS) and Myasthenia Gravis (MG) have their own forums below.] |
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04-16-2007, 08:40 PM | #1 | ||
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Magnate
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Well, I've a tentative 'Hasimoto's' to add to the CIDP and BC list...This one couldn't get 'checked off the list' after all? Saw an endo last week [seemingly a good one-I sure HOPE] as my blood work #'s were well, OFF. The referral was by my Ocon, and at first I admit I was reluctant as my long-time Hypo-thyroid had seemed stable except for a few months after the CIDP onset....DUH! Waiting for blood, etc. results - I really hate waiting now.
Everyone! This is your opportunity to TELL ME: I TOLD YA SO!!!!! I mean, I'd kept asking my docs [ALL of them] are you SURE it's not thyroid? Always an "Absolutely Not!'... So I hummed along.. for FOUR years. I mean, every symptom overlaps with either my other med issues or the meds that are supposed to help. Yikers when the doc did the sono...he said he saw scarring, probably from auto-i-ness. At that point I recalled all YOUR posts, and had sort of 'filtered' them out blithely thinking...not me. Well I can eat crow? I am eating crow - now. You know what I mean. BTW all along after an adjustment for that first TSH# change I'd thought all had been peachy? Teach me please, Point me to where to learn... It looks like some good info is out there, but there's gotta be more? I guess in the meantime we should start some sort of running joke about how many auto-i's does it take to screw or put in a light bulb? Or, are they/is it like rabbits? The adventure continues? Thank you dear people - patience is the art of hoping- from my favorite fortune cookie - j |
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04-16-2007, 09:08 PM | #2 | ||
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Grand Magnate
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One of the best books out there is the Thyroid Solution by Ridha Arem
Best of luck! |
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04-16-2007, 09:26 PM | #3 | |||
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Member
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I got my thyroid problems out of the way early on, though it took the doctors about 10 or 11 years to figure out I had an over-active thyroid, and it wasn't until the goiter was starting to finally show, after who knows how long of being inward growing, that they diagnosed it. Face it, we're at the mercy of our doctors. I really think you should feed them the crow, rather than eating it yourself!
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Lois . |
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04-19-2007, 05:40 AM | #4 | ||
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Magnate
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but, will be getting cys of the test results in the mail before then. Am waiting for those results with part anticipation and part dread. Could be worse tho....
I'm just hoping that all that's needed will be some sort of tweak of thyroid meds, but only tests and time will tell. IN the meantime, a small hope that at least ONE good thing happens in your day! - j |
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05-07-2007, 02:43 PM | #5 | |||
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Member
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I know how you feel....With a long family history of Hashi Moto's...you'd think the docs would have had a clue why I was sleeping round the clock, severe cold intolerance and other symptoms related to it.
But....I just can't seem to find the majic numbers for me as I don't always absorb well....My dose is changed just about every visit! I'm sick of it! Don't eat crow...it doesn't taste all that good! Yukky~ Hugs cheryl pics: Crow alternatives!
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No well behaved woman ever made history! I am forced to take one day at a time....God won't let me fast foward through the bad times . Still life is worth living no matter how bad my pain is....there will be a better day....I tell myself this often, and the sun breaks through the clouds...and I smile! . |
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05-10-2007, 03:11 PM | #6 | |||
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Junior Member
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Desiccated thyroid is the only thing that helped me (with Hashimoto's). The synthetics have only T-4*, and my body wasn't converting any to T-3. The desiccated has both and made a huge difference.
Just thought I'd throw that out here. *There are synthetic T-3s, like Cytomel, but the usual Synthroid, Levothroid, etc. are only T-4. Last edited by SwampWitch; 05-10-2007 at 10:49 PM. Reason: spelling |
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