[MKLIRA]

Hello,

we have an 11 year old son. In 2008 he was tested for several things. He was diagnosed with hoshimotos thyroiditis. He has has a consistent high t4, tested positive for anti-tpo (level <1000), thyroglobulin antibodies (<1193), + ana, ana titer 1:160, + for immunoglobin a, positive for ach binding and modulating, positive for gad antibodies. He has no clinical signs or symptoms of myasthenia gravis, he sees a neurologist regularly as well as an endocronologist and will see a pediatric rhuematologist next week. Ophthamologist said he does not see signs of mg. I have doctors that wonder why there are so many antibodies and what they can and will do and doctors who say they are just there and don't mean anything

[MKLIRA]

Originally Posted by MKLIRA

Hello,

we have an 11 year old son. In 2008 he was tested for several things. He was diagnosed with hoshimotos thyroiditis. He has has a consistent high t4, tested positive for anti-tpo (level <1000), thyroglobulin antibodies (<1193), + ana, ana titer 1:160, + for immunoglobin a, positive for ach binding and modulating, positive for gad antibodies. He has no clinical signs or symptoms of myasthenia gravis, he sees a neurologist regularly as well as an endocronologist and will see a pediatric rhuematologist next week. Ophthamologist said he does not see signs of mg. I have doctors that wonder why there are so many antibodies and what they can and will do and doctors who say they are just there and don't mean anything

I should also add that 12 years ago my exhusband, our sons father, was diagnosed with non treatment responsive hoshimotos encephalitis and still suffers from the disease. He also had anti- TPO and TG antibodies both showing <5000, positive GAD and ANA ab and titers.

[hesilverlining]

Originally Posted by MKLIRA

I should also add that 12 years ago my exhusband, our sons father, was diagnosed with non treatment responsive hoshimotos encephalitis and still suffers from the disease. He also had anti- TPO and TG antibodies both showing <5000, positive GAD and ANA ab and titers.

First, I am so sorry for what you and your family are going through. I have HE myself, *edit*Unfortunately, there seem to be a lot of pediatric cases of HE.

*edit*


Hang in there. The science is really starting to get somewhere with HE the last couple of years. There are studies coming out of Japan that hold promise for finding a valid, sure-fire test for HE although they will need a few years of testing to see if the science holds up in real life.

Peace be with you.