I can't eat anything cold due to RSD in my mouth... I hate room temperature drinks and food!

For me, temperatures above 75f and below 72f are torture.

I feel my overall grip, from hanging in there, is growing weaker... holding on by the tips of my fingernails... I think.

I know it sounds strange...but for me...this all just doesn't pass or ease with time. It has just grown worse over the past 6+ years.

Mentally... i'm exhausted beyond compare....
Emotionally... pretty much vacant and trying to vacate what's left.
Physically... i'm but a fat shell of what I used to be due to 24/7 pain at a constant 8,9,10 pain level.

Dear Abbie
 

are there maybe assisted living places that could help you deal with the day to day... and maybe are hooked up with different doctors... what do others with RSD do... i am just trying to think of different alternatives... other avenues to explore maybe? i don't know if your pain doc is at that same clinic, but does he specialize in RSD? what about experimental treatments?

i wish we could just wave magic wand for you, Abbie. :(:hug:

~ waves ~

(((((HUGS)))))
very gentle ones for you dear abbie.
bizi

My Pain Management doc looked at me and said... "Your pain is too complicated and widespread for me to do anything for you"

I am trying to wait for my appointment at the University Pain Clinic which I have had to wait about 6 months to get in to see them...

I think they know about RSD as it is listed as something they treat on their website. From what I have heard, they take a multidiscipline approach... several different types of doctors and physical rehab therapies.

Honestly though, I don't hold much if any hope for any relief. (Due to past experiences and inability to take pain medications)

I'm sorry for being negative about everything....http://serve.mysmiley.net/ashamed/ashamed0005.gif
Thank you for everything----listening, offering help, hugs, etc...
http://serve.mysmiley.net/sad/sad0047.gif
Abbie

((((((HUGS))))))
bizi:hug::hug::hug:

Dear Abbie,

don't worry about 'being negative' and expressing it. you are living with a huge burden that you can never put it down. it is awful! :( just from reading about RSD it is scary what people have to go through and then on top of that you have the bipolar! and then doctors tell you they don't know what to do! :eek::( who wouldn't feel negative about that!!!!!

i so hope they can help you at the University Pain Clinic!

when is your appointment?

:hug::hug::hug:

~ waves ~

Abby

Let us know how you are doing.

Donna

dear abbie,
when is your appointment?????
gentle hugs to you tonight
((((((HUGS))))
bizi

The best I can say is I'm "ok".

I can't say that I am good as that would be a lie... and to describe how I really feel is complicated at best and too hard for me to put into words.

It's almost impossible for me to break the mental,emotional, and physical pain apart from each other. To say I hurt.. that's an understatement.

And the bazillion things running through my head makes it very difficult for me to talk, read, write, etc....

:(
Abbie

Dear Abbie, :hug: :hug: :hug:
I am happy to hear from you. It is good to see your posts.

You don't have to put anything into words for us about what is going on. We understand that you are having a rough time..

I wish you could feel better.
Lots of hugs.
M.