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Old 05-21-2010, 11:04 AM #21
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colleen, the trileptal can cause a low sodium, it caused that in me had to switch to lamictal. I ma sorry that you suffer with an eating disorder too...this could contribute to the problem.
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Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer.....
Happiness is a decision....

150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
klonipin , 1mg at night


I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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Old 05-22-2010, 07:10 AM #22
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Default hi collinsc

i am sorry your friends don't understand how hard things are for you. i do not think your life is 'fine' nor would i like to have the problems that you do with the syncope on top of everything else.

that is true about the trileptal - i also had issues with it. came on suddenly and i had been taking it for quite sometime, without issue. i don't know if it was low sodium - i just tried lowering the dose and since the problems did not go away he switched me off of it period. my symptoms were fatigue and imbalance (poor coordination, stumbling), with paresthesia of the torso, arms and face.

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Old 05-22-2010, 06:43 PM #23
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Quote:
Originally Posted by befuddled2 View Post
I take a directic and wonder if that is why I keep getting dehydrated. The article was interesting Mari, thank for the link to it.

Colleen, do you have a blood pressure monitor that you can check you blood pressure to know when it is low?

barbara
Barbara,
Hello! I do have a blood pressure machine that I use to use 5 times a day! It would sometimes be extremely low in the morning, I would pass out and my husband would take it and it would be low! Like really low 45/32 things like that! Sometimes it would be so low that the machine would not even read it! I no longer test it because we have all the evidence that we need and it really just upsets me!

Colleen
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Old 05-22-2010, 08:50 PM #24
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wow that is crazy low!
do you have a cardiologist?
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Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer.....
Happiness is a decision....

150mg of lamictal 2x a day
haldol 5mg 2x a day
1mg of cogentin 2x a day
klonipin , 1mg at night


I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9,
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Old 05-23-2010, 01:28 AM #25
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Quote:
Originally Posted by bizi View Post
wow that is crazy low!
do you have a cardiologist?
bizi
Bizi,
Yeah I have two cardiologists! Neither one has been able to fix the problem! They have also shipped me off to see another cardiologist to see what he thought! They are doing everything they can I just am not responding to the med they have me on!

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Old 05-23-2010, 03:02 AM #26
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Colleen
The third guy might be the charm!
We can hope along with you.

M.
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Old 05-23-2010, 06:50 PM #27
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Collinsc

And they sent you on, because they had no more answers. So if this
doctor can't come up with a answer. Hopefully he/she will send you
on too.

Donna
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Old 05-23-2010, 08:27 PM #28
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Colleen, I know it's got to be frustrating as all get out. Like Mari said if the new cadio doc can't help you maybe he will send you to another. You hang in there.

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Old 05-24-2010, 07:40 AM #29
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Default Vanderbilt!

Hello there,
I do not have much hope that this new cardiologist is going to be able to fix me! I already see two of the best in the area and I live right near Albany N.Y. I am hoping on the other hand to get some answers August 13th when I go to Nashville Tenn. There is a place that specializes in syncope (fainting)! They are #1 in the country! It is the Vanderbilt University/Hospital/Clinic. I guess from what I am understanding, which isn't much, there is a problem with my Autonomic system. Your autonomic system controls many things in your body, blood pressure being one of them. I think if any place or persons are going to be able to fix me it will be there and them! Now all I have to do is not have another nervous breakdown before then! LOL!!

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Old 05-24-2010, 08:09 AM #30
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Good to hear that you are going to Vanderbilt, Collinsc. sounds like the right place!

I hope that they will be able to give you some answers - and some solutions!

hold tight till then.

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