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-   -   My new thread (https://www.neurotalk.org/bipolar-disorder/188609-thread.html)

Mari 06-21-2013 06:57 PM

Quote:

Originally Posted by waves (Post 994142)
We can distill the tiny chunks he needs to know. He does not need to know all the science behind allergic responses.

He needs to know:
-------------------------
-- This is not a fluke: you will react to further mango exposure.
-- You must be kept safe from further exposure.
-------------------------
-- The allergen in mango peel, called urushiol, rapidly contaminates materials it touches.
-- It is unsafe for you to have *any* exposure to mangos as well as surfaces, cloth, skin (his), that might have touched them even momentarily.
-------------------------
-- He can decontaminate exposed materials by immediately washing them with soap and water.
-- Skin is only decontaminated by 50%, at most.
-------------------------

That should be enough to put him on the right track.

Do you think he can "tolerate" that amount of text?

Next question, would he have a problem "believing" this stuff without viewing the references? If need be, we could give references but it's hard to find references that aren't text.

=============

I looked for diagrams but kept finding things on the allergic immune response; none covered progressive sensitization over time. One article expressed this concept with numerical data but within the text. Also, it was not a formal study and the number of people involved was small.

waves

Hi, Waves,

Years ago in college, hubby and a bunch of buddies caught a ton of fish and made a fish fry. One kid ended up in the ER. He remembers this clearly -- the part about someone having to go to the hospital for eating the same food everyone was eating.
Also he spoke to his gym buddy about mangos and me and the gym buddy grew up in an area where mangos were native and was aware that usually the skin is the part that people are allergic to. Hubby told me that the gym buddy himself once ate something that messed him up causing him to drove to himself to the ER. The ER docs told him he should have called 911.
I think the gym buddy helped hubby understand that this is serious.
But I am not confident that hubby "gets" it because he only half listens to people --- he sort of gets bored when anyone is talking and spaces out similar to how a person with ADHD might.

I slept until 7:00 pm so I have not talked to hubby today and will not do so until later.

Mari

Mari 06-21-2013 07:07 PM

update on talk therapist
 
My insurance company called me while I was sleeping all day today and left a voice mail with the name of a therapist (female) who is taking patients.

I will call her Monday. The state license page lists 2003 as the date of her original license.
When I search for her via google her address is far away and when I search by reverse phone I get confusing locations because she is apparently part of a group. I hope she is conveniently located for me. My tolerance for driving has declined.

M

DiMarie 06-21-2013 11:45 PM

Oh Mari, I hope it all goes well for you with the potential therapist. So frustrating to replace and find really good health care providers.
Crossing my fingers. Try to enjoy your weekend,
Di

bizi 06-22-2013 12:03 AM

I hope she is close to you and that you like her, trust her...time will tell.
bizi

Mari 06-22-2013 01:41 AM

Thank you, Di and Bizi, :hug: :hug:

Things work out sometimes.

Mari

waves 06-22-2013 02:46 AM

therapist & rash
 
Hi Mari,

I wish you well with this new therapist.

You sounded iffy about the one you tried, even though what you said about the session sounded good, as did her location.

I guess she just didn't feel quite right? I hope this one does - and that she is nearby.

===================

How are the rashes (skin, mouth)?

Did the skin doc get to see the one around your mouth - was it showing when you went?

waves

Mari 06-22-2013 06:31 AM

lots going on I guess
 
Quote:

Originally Posted by waves (Post 994312)
I guess she just didn't feel quite right?

Waves,

1 She did not return my two calls after I missed the appt. I feel that I could make another try at a therapist.

2 The mango rash is going away. My mouth still feels bothered. The skin doc did not look at my mouth. For some reason I did not make the association between the mouth thing and the arm/wrist/ finger thing until after the appt. Perhaps the mouth did not bother me until later that day.

3 My two acupuncturists would have known how to treat the mango and possible associated allergies. I hope that my most recent old acupuncturist will see me. I last saw her two years ago for two sessions. I am not confident that she would or could see me ( . . . but that may be my depression talking. ) I expect to call her by end of next week.

4 I am sad (in addition to the depression) right now because saying good bye to my work friends' wife and eighth grade kid will be hard. I am so teary and I do not want to upset them. I reallly want to cancel our Sun meetup rather than upset them with my crying.

5 Friday was a horrible day in part because my cpap stopped during a bleep in power. The other appliances came back but that one was broken it appeared. I got on the phone, slept between call backs without the machine, got hubby to help trouble shoot . . . . eventually hubby got himself motivated to fix the problem when he heard that I was prepared to make him drive me 1 hour and spend $800 for a cheapo machine ( - - - I am not sure if the prospect of the drive or of having to spend money was the bigger deal for him.) :) ;)

M

waves 06-22-2013 07:19 AM

Hi Mari,

I am sorry things are so difficult and that you are having to juggle so many things. :hug::hug::hug:

Quote:

Originally Posted by Mari (Post 994330)
1 She did not return my two calls after I missed the appt. I feel that I could make another try at a therapist.

I hate that she did not call you back. That makes me angry at her. I am glad you feel willing to try another therapist.

Quote:

The mango rash is going away. My mouth still feels bothered.
Good to hear the rash is clearing. :)

Ideally you should treat the rash around your mouth too. The desonide should be fine applied around the lips (not on them). If you are uncomfortable with the desonide for your face, your other cream is an option. To use a minimal amount, rub the cream into a Q-tip, then dab or roll the Q-tip over the skin.

Quote:

My two acupuncturists would have known how to treat the mango and possible associated allergies. ... I expect to call her by end of next week.
I wonder if their treatment can reduce your sensitivity in case of future exposure.

Quote:

saying good bye to my work friends' wife and eighth grade kid will be hard. I am so teary and I do not want to upset them. I reallly want to cancel our Sun meetup rather than upset them with my crying.
Tears are not inappropriate here; I am not convinced your crying would upset them. But maybe this feels too hard for you? If so, by all means, cancel. Otherwise, I would not deprive them and yourself of the chance to say goodbye, merely to "protect" them from your emotions. Odds are they don't need protecting. Just my take.

Quote:

Friday was a horrible day in part because my cpap stopped during a bleep in power. The other appliances came back but that one was broken it appeared. ... hubby got himself motivated to fix the problem when he heard that I was prepared to make him drive me 1 hour and spend $800 for a cheapo machine :) ;)
Haha! Sorry your cpap c_apped out on you like that... yuck! :o Good job dealing with hubby though! :D

waves

Mari 06-22-2013 09:15 AM

Quote:

Originally Posted by waves (Post 994344)
Hi Mari,
Ideally you should treat the rash around your mouth too. The desonide should be fine applied around the lips (not on them).

I applied the Desonide to my wrist a little while ago. The area started stinging so I washed it off with soap and water.

It came to me from the pharmacy with a big huge colored warning to discontinue if it bothered me. :confused:
It has been d/c ed. :mad:

Quote:

But maybe this feels too hard for you? If so, by all means, cancel.
I might take Klonopin ahead of time and find some way to get up from the table a few times and find other ways to keep myself focused on other things or alternatively to distract myself.

Quote:

Otherwise, I would not deprive them and yourself of the chance to say goodbye, merely to "protect" them from your emotions
I guess I want to protect myself from my own emotions.

Quote:

Odds are they don't need protecting. Just my take.
That is true.

Hubby found the details he wanted yesterday: his gym friend was standing near fire ants at a ceremony near a gravesite and felt he could not leave to get away from the ants. After the ceremony, he drove to the hospital.
Hubby thinks my mango incident is worthy of laughter because apparently it does not compare to an ant bite. ("Mangos are harmless," he said.
I had to talk to him AGAIN. I will find a freeeking movie or something and make him watch the whole thing and pass a written exam on it. :eek:

In related news, a friend's husband reacts to the meat of mammalians. She eats vegan and apparently feeds him eggs or chicken or fish. It is too hard for me to explain so I will put it in my next post.
Mari

Mari 06-22-2013 09:21 AM

mammalian meat allergy
 
This seriously affects some people:

What exactly is this mammalian meat allergy?

http://allergytomeat.wordpress.com/f...ked-questions/

Quote:

When certain people are bitten by ticks or chiggers, the bite appears to set off a chain of reactions in the body.
One of these reactions is the production of an allergic class of antibody that binds to a carbohydrate present on meat called galactose-alpha-1,3-galactose, also known as alpha-gal.

When a person with the alpha-gal antibody eats mammalian meat, the meat triggers the release of histamine. Histamine is a compound found in the body that causes allergic symptoms like hives, itching and, in the worst case, anaphylaxis (a reaction that leads to sudden weakness, swelling of the throat, lips and tongue, difficulty breathing and/or unconsciousness).

How many other people have this allergy?
Quote:

To date, we have heard of several thousand people from across the United States and abroad who have developed delayed hives, swelling and anaphylaxis 3-6 hours after eating mammalian meat.
Apparently, the almost six hour delay from consumption to allergic reaction has made the allergy difficult to recognize/ identify until recently.

This is weird and disgusting somehow.

Mari


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