[Mari]

Hi,
I last washed on Saturday. I need to shower or bathe in some fashion and I'm not up to it.
I want to sleep all day and stay up all night when there is nothing I can do.


M.

[Pamster]

I used to hate bathing in my old place, there was rust spots on the tub and I had a fear of it breaking with me in it so I wouldn't get washed up as frequently as I liked to. I don't think you need a bath daily, but my kid sure does....Hehehehe...But back to use adults, I don't get in the tub as easily as others can with the one leg and all, but I try to get in a couple times a week.

I sometimes used to just wash my hair and go as long as a week without bathing because of that darn tub...Now I have to wait until the kid is in bed so he's not trying to get IN with me, but man it's a chore to get clean, I totally empathize with you Mari. I hope you feel up to it tomorrow. Don't be too hard on yourself about it.

[mymorgy]

can you compromise and clean yourself with a towel and soap and water?
it is less stimulating
bobby

[Mari]

Just before it got dark, hubby drove me to the park and walked around the duck pond with me. I feel better now after the walk.


Yesterday the pdoc said my sleep problem is behavioral.
The therapist says the sleep problem needs meds.

Same story for two decades:
The therapist can't help if it is a med problem and the pdoc can't help if it is a behavioral problem.

[shiney sue]

I'm glad the walk made you feel better. But i don't know where you live
and i don't think i have enough hose. And to be honest i got no sleep
last night,and i need a shower or bath to. Hmmm no if i used the hose
the neighbors might complain.. You can do it. Sue

[bizi]

Originally Posted by Mari

.....Yesterday the pdoc said my sleep problem is behavioral.
The therapist says the sleep problem needs meds.

Same story for two decades:
The therapist can't help if it is a med problem and the pdoc can't help if it is a behavioral problem.

UGH!!!!!
this is maddening.
I am sorry for you.
((((HUGS))))
bizi

[Pamster]

I agree with bizi, it must be really frustrating for you Mari. I wish there was something you could do about the sleeping problem. I know how bad it is when you're not sleeping well. I used my cpap last night and thankfully got some good rest, but for most of this week I slept badly because of no door chains and anxiety about my son. What keeps you up? Have you tried melatonin before? What about elavil? I take both and they help a lot with sleeping. I wish we had an answer for you.

[Mari]

Dear Bizi,
I like my therapist and I trust her.
But she thinks that even though the sleep may have started as a psychologial problem it may have turned into a medical problem by now. She said something about the synapses having grown new paths.

Dear Nikko,
I tried melatonin. Nothing.
And yes, it is hard to be tired during the day when it seems that the rest of the world is a wake and functioning. Maybe many of them are faking it too.

Dear Mymorgy,
My mother used to insist that we were in our beds by 9:30. She wanted "lights out" and "kitchen closed" so that she could go to sleep. Then she got up early and she and I had fights every morning because I slept as late as possible and was almost always (but never actually) late for school.
Night time was time for staying up with my father when he was home to listen to his classical music with him or to listen to him talk about his book that he was reading.
Day time is for efficient people who like to make lists and run around like they are important. I could skip all that.
Sleeping in the day feels luxorious and decadent somehow. I feel lucky when I can wake at 1 or 2 or 3 pm with out anyone yeling at me.
Well, this isn't the whole thing of course, but I like the night.



I was so happy that the pdoc understood immediately what I was talking about when I said I don't go to bed. He said that he and I have medicated the moods pretty well. He said he can't medicate my getting off the computer (or whatever) and putting my body in the bed.
I need to do that for myself. He said I can reset my clock in 10 days. I thought that he was being a bit optimistic but I liked hearing something that almost sounded like a plan.
He explained alittle bit about the brain and sleep.
And he told me a little about his own sleep hangups -- he likes to fall alseep watching Letterman even though he ends up with poor quality of sleep with the TV on.

Mari

[Mari]

Dear Pam,
I have noticed that place matters. We have too bathrooms now and I like one better than the other. It is easier to wash my hair and keep everything else dry. Getting in and getting out is a chore. And I have sympathy for you with extra challenges.

Dear Bobby,
Giving myself a spong kind of thing works sometimes. It depends on my issue. It certainly avoids the stimulation. But on the other hand it can feel like work and too much concentration invovled.

Dear Shiney Sue,
I kept thinking about your hose suggestion. Thanks.
It would solve some of my problem!
Maybe I can pretend that the shower is a hose and jump in, get wet, let the water run, and get out. I don't have to soap and clean. The water will do some of the job and it is better than no cleaning at all.
This kind of thinking in working. I showered two nights in a row--- extremely unusual for me.

M.