[OhKay]

I had not been out of my apartment since I started experiencing the new MS symptoms, so I didn't exactly know what I was dealing with until I went out to clean off my car yesterday morning. I am clearly really favoring my right side. I'm a bit of a mess right now.

Since it's not a problem that can be cured by rest, and the roads were clear, I decided I would run some errands while I was out as long as the parking lots were clean. I didn't have much to do, so I took my time, and got it done.

I will probably end up making some kind of adjustments that will make it easier to walk. That's what usually happens. I have a preexisting appointment with my neurologist on the 21st.

I'm going to get started on my Christmas cards today. My hands are weak and I have a slight tremor, so they'll take me a long time. I wish they gave you more extra envelopes…

[bizi]

Good luck with your card writing.
yes take your time.
sorry for your new MS symptoms. Maybe it is time for better meds?
(((((HUGS)))))
bizi

[OhKay]

I don't take any meds to treat MS or its symptoms, although I have in the past. That's something that's not going to change at this point. I would consider going back to PT if I'm not compensating well enough for the gait changes by the time I see my neuro.

I had a really hard time with the Christmas cards. I have OCD and am very particular about the presentation of things like that, but after a couple of breaks didn't improve my penmanship, I let it go. Everyone on my list knows I have MS, and I'm sure they'll understand why their cards aren't addressed perfectly. I don't do a lot of writing, so my hands hurt.
I'm still waiting for two addresses from my aunt, and will have my husband sign a couple of cards this evening because I'll have my MIL's Bday card by then. I hope to mail them all tomorrow.

I have an appointment with my pdoc at 8:30am!
I'm always up early, but I like to veg for a while before I go out. I have to straighten out my scripts with her because CVS made a mess of things. Right now I'm stable and have no complaints. There's a strong possibility I may have issues down the road, but I'm trying to stay positive and hope some heaping doses of denial will help.

[bizi]

By now you are will be having your appointment with your pdoc,
hope it goes ok and that they can fix your scripts.
Well at least you have options for meds if you want them in the future....
I thought you were on them already sorry.
How did you feel when you were on them before?
love you
bizi

[OhKay]

I wrote down what I did and didn't have for scripts before going to my pdoc appointment, so we got all of that straightened out. If something ends up going awry, it will be okay because she's pretty good about getting refills to the pharmacy when I need them.

I've taken two different disease modifying drugs (drugs that are intended to reduce the number and severity of relapses), but they didn't work because my main problem is with progression vs. relapse so I see no point in putting any of that **** in my body anymore, and have no plans to do so in the future.

I have decided not to take any meds to treat my MS symptoms either because I'm on 9 other meds right now. Treating my BP is my main priority. It is hard enough trying to get/keep me stable, and I don't want any other drugs to make that more of a challenge. I also know that the combination of the meds I already take, and the meds to treat my MS symptoms would totally zombify me. I have enough cognitive challenges already and I sleep enough of my life away, so I'll just suck it up until I absolutely can't anymore.

I'm sorry if that comes off angry. I'm not angry at you. I'm just going to be a little angry for a little while. I've been dealt a bad hand, but these are my choices, and that's why I made them.

[bizi]

You have every right to be angry.
You did not ask for MS.
I think you are brave in the way you struggle to live your life.
(((((HUGS and love)))))
bizi