[OhKay]

I'm 36.
I didn't have to have an ovary out, thank God.
I had the night sweats before surgery too, when I still had the cysts, my fallopian tubes, and was on birth control… the symptoms are the same now that I'm off the birth control and don't have the cysts or my tubes.
I've had 2 regular periods without breakthrough bleeding now that the cysts are gone and I'm not taking birth control… so I don't think hormones are the problem.

An hour and a half after I had called my neuro's office to ask them to re-fax the order for the MRI, I called to make sure registration had received it, but of course they had not. I called my neuro's office back to ask them to re-fax it again and spoke to a secretary who sounded competent, so I didn't call registration back to check on it. So, I'm waiting for them to call and schedule me…

I found out that my neuro only ordered an MRI of my brain, and I'm not happy about it because 1) I would have liked to see what MS has done to my spinal cord in the last 2 years 2) I would have liked to see what the discs in my neck look like now and 3) if he decides later he wants to look and my spinal cord, or I have to go to an ortho for my neck and he wants and MRI, I'll have to pay another $250 copay. I should have asked him about it at the appointment, but I didn't, and it's a little late in the game to ask him to rewrite the order.

I made an appointment with my PCP about the night sweats, will let him know about my other symptoms, and let him figure it out. I had asked my neuro to run my thyroid level because I'm due anyway, and my PCP will have access to the results of that test. The appointment is at 3:15… bad time of day for me.

I went grocery shopping yesterday, but probably should not have. At least it's done and I don't have to worry about it for another week or so.
I'm doing laundry now. 2 loads. It will take care of all the clothing, but I still need to wash a set of towels, a set of new sheets, and that quilt Buddy puked on. I have plans to wash all of that at the laundromat sometime when I feel up to it.

[bizi]

I am glad that you have your father in law
to talk to since he is a "Doll"
My family has been doing group texting which I don't like but oh well.
It gets information out to several people. sometimes the conversation is about sports. Other times about house showings, parents are trying to sell their old farm house. Spring is the time to sell.
I hope they get an offer soon.
I really don't like going to the laundrymat but sometimes you have to do things we don't like.
My vote is to call and get the orders rewritten, it is worth a try.
bizi

[OhKay]

I don't mind going to the laundromat. The problem is hauling anything there. That quilt alone is very heavy. If I still could, I would do all my laundry there like I used to do before I became handicapped. I could wash, dry, fluff, and fold a week's worth of laundry in about 2 hours (it would take me much longer now tho) for much less money than I spend doing it here. I wouldn't want to do it with my husband. He's SO impatient and unpleasant with such things, it's worth the hassle doing it here, and I guess I have plenty of free time.

I called registration yesterday to get the MRI scheduled and will have it done tomorrow morning.

I saw my PCP yesterday and he was fixated on my meds again, "you're on so many medications we have no idea what they're doing to you." I agreed... they can do damage beyond sedation. There have been no recent med changes tho, there has been a rather sudden increase in my fatigue and cognitive issues, and I don't know where the night sweats are coming from. I'm still dealing with the cough I've had for several months that we're blaming on asthma, so he ordered a chest X-Ray. And he ordered some miscellaneous blood work. He couldn't get the results of my thyroid level my neuro had drawn, so he will put in a request for that (if he remembers).

I am on a ton of heavy meds, and I know that they have to be contributing to my fatigue and cognitive problems, but I have a good idea of what my baseline is, and I don't know why he can't understand that. I left my PCP's office feeling like he was only looking at my med list and I wasn't being taken seriously, and that's exactly why I didn't want to do see him with fairly non-specific symptoms of something.

He said he wants me to call him before anyone puts me on anymore meds. I didn't mention it at the time, but that's an unreasonable request given the severity of my mental health problems. 7 out of the 9 meds I take a day are psych meds and I don't take them out of any sort of enjoyment. I would love to just start from scratch, so I'm taking the bare minimum, but that would be dangerous.

After I had the X-Ray done, the tech told me they would have the results (last night) and if it was something serious they would call me, otherwise my doctor will call me (today). I don't take that as a sign that there's anything wrong tho. I figure she's probably naive and unaware of how doctor's offices actually operate.

[bizi]

I am sure your fatigue is not something that is easily diagnosed. Since you are on a lot of meds it would be hard to know especially, since they are mostly psych meds maybe it would be better to ask the pharmacist to check for compatibility, side effects, etc. Your pdoc may also know better than your reg mdoc your psych meds.
I have had fatigue spells where I had to go to sleep. ruins your day.
bizi

[Mari]

Maybe I will give that PCP the benefit of the doubt.

But morons like him are one reason why the mentally ill are in poorer health
than the rest of the population.

I am happy to hear that he ordered blood work and the X-ray.




M

[OhKay]

My pharmacist(s) have checked for drug interactions, and I have as well. Obviously a lot of them can cause sedation, especially in some combinations, but that's unavoidable. My pdoc recognizes that they contribute to my fatigue, but she is aware of my baseline and tolerance. She knows me well, and can tell when something is wrong physically. She's the one who urged me to see my neurologist in the first place.

All the testing my PCP ordered came back okay. I don't know if that includes my thyroid level because I don't know if he requested the results. My neuro ordered it, so I'm sure he will let me know.

I had my MRI yesterday. Because of waiting, my 40 minute appointment took over 3 hours. I reviewed the images when I got home. I'm out of practice, but from what I can see, I have quite a few more lesions than I had on my last MRI. Two lesions, one of which was very large, enhanced after I was given the gadolinium contrast. What that means is that there is significant inflammation present and I'm probably in the middle of a relapse.
Other things look different, but I'm not a radiologist or a neurologist. I've decided I'm not going to compare MRI's. I know where my old lesions were, and there are more, and that's what's important. My neurologist is back from vacation on Monday, and if there is something else noteworthy going on, I'm sure I'll hear about it soon enough. I'm looking forward to talking to him about my MRI in general.
I have only viewed the images once, and I'll probably look at them at least once more to try to count them and see if I'm missing anything that I'm capable of interpreting. I wish I had images of my spinal cord, but I don't. Oh well.

I have an appointment with the urologist today at 4. I don't know what to expect and I'm anxious about it.

Yesterday morning I ended up with a cold shower, and when I tried to rinse all the soap off, the lever to change the spray broke off and was left at a setting where water was barely dribbling out... and boy was I thrilled! So, after my MRI I had to go to Lowe's to buy a new one. I'm very indecisive, but I ended up picking one that was husband-approved, so I guess my trip was a success.

When I made the bed this morning, I found cat puke on the back-up comforter just below the pillows. My husband must have missed it because he went to bed so drunk, and I didn't see it because it was dark when I went to bed. It came off fairly easily, but still... Now both the quilt and comforter need to go to the laundromat.
Maybe my husband will come with me this weekend to get everything washed? lol. That's never gonna happen. lol.
Maybe next week will work and I'll feel better. You never know. Stranger things have happened.

[bizi]

kay, do these lesions go away? or are they permanent?
When will you talk with your neurologist?
good luck with your urology appointment.
You are so brave with every thing that you are going thru right now.
I don't know how you handle all of the stress.
yes hubby to go with you to do laundry, you guys could play cards there
sorry about the cat throe up.
no fun.
(((((HUGS and love))))
bizi