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02-09-2017, 06:18 PM
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#411 | |||
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Legendary
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Saw sleep neuro:
He talked a lot: 1 said something about my going into REM sleep early/quickly although I do not remember the context 2 suggested I have narcolepsy 3 recommended trying 1 mg melatonin early in the evening 4 recommended no blue light in the evening (no tv or computer) 5 recommended sunshine in the mornings 6 wants me to go to a nearby medical school for CBT for help with getting to bed / sleep patterns / fear of sleep 7 had me work with his sleep tech to replace the mask that I am using for something better. I brought home two new masks to try. M |
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02-09-2017, 06:26 PM
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#412 | |||
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Wisest Elder Ever
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HOw do you feel about this?
bizi
__________________
. Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer..... Happiness is a decision.... 150mg of lamictal 2x a day haldol 5mg 2x a day 1mg of cogentin 2x a day klonipin , 1mg at night I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9, |
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02-10-2017, 03:22 AM
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#413 | |||
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Legendary
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Apparently, when they fall asleep, folks with narcolepsy go directly
into REM (dream sleep). This is perhaps why I have a hard time committing to going to bed --- -- basically I start dreaming (hallucinating) while I am still awake or right at the edge of sleep. It was scary before old sleep doc explained it a year and a half ago. He told me to realize that I was not hearing or seeing real things -- I was dreaming. I would rather stay awake than deal with that. Hypnagogic Hallucinations. About Hypnagogic Hallucinations | Patient IT FREAKS ME OUT AND HAS MY WHOLE LIFE. Sleep - Sleep Disorders - Narcolepsy |
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02-10-2017, 06:50 AM
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#414 | |||
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Elder
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I hope that his recommendations and one of the new masks work out
 Narcolepsy makes sense the way you have explained it. Did he mention you having another sleep study to test you for it? I had it done over 10 years ago. They repeated the nighttime test and then had me stay at the hospital for several hours afterwards and had me return to to the sleep lab periodically to try to take naps. It wasn't fun. |
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02-10-2017, 08:16 PM
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#415 | |||
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Legendary
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Quote:
 I am pretty sure that I will not agree to anything like that. M |
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02-11-2017, 09:03 AM
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#416 | |||
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Elder
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I don't blame you for not wanting to do the test. It was unpleasant.
You don't have to decide now, but I would at least consider it because if you have narcolepsy, and can get the proper treatment for it, that may drastically improve your life
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02-11-2017, 05:04 PM
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#417 | |||
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Legendary
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Quote:
It involves being in a room that is 100% dark on day two. I cannot do that. I did not argue with him or anything like that because he was only mentioning it. M |
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02-11-2017, 05:41 PM
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#418 | |||
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Wisest Elder Ever
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It is your body and you get to decide what you will do and put up with.
(((((HUGS)))) bizi
__________________
. Hattie the black and white one wrestling with hazel, calico. lost hattie to cancer..... Happiness is a decision.... 150mg of lamictal 2x a day haldol 5mg 2x a day 1mg of cogentin 2x a day klonipin , 1mg at night I will not give up in this weight loss journey, nor this need to be AF. 3-19-13=156, 6-7-13=139, 8-19-13=149, 11-12-13=140, 6-28-14=157, 7-24-14=149, 9-24-14=144, 1-12-15=164, 2-28-15=149, 4-21-15=143, 6-26-15=138.5, 7-22-15=146, 8-24-15=151, 9-15-15=145, 11-1-15=137, 11-29-15=143, 1-4-16=152, 1-26-16=144, 2-24-16=150, 8-15-16=163, 1-4-17=169, 9-20-17=174, 11-17-17=185.6, 3-22-18=167.9, 8-31-18= 176.3, 3-6-19=190.8 5-30-20=176, 1-4-21=202, 10-4-21= 200.8,12-10-21=186, 3-26-22=180.3, 7-30-22=188, 10-15-22=180.9, |
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02-11-2017, 07:37 PM
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#419 | ||
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Legendary
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Wish I had some answers. I know a couple people that have
NarcoEpilepsy . There are a couple meds that they use for this.  Donna
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02-12-2017, 08:53 AM
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#420 | |||
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Elder
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I had the test done a long time ago, but they didn't keep me in a dark room all day. They encouraged me to go outside, etc.
I'm sorry you can't do the test, and sorry for suggesting you should
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re going to bed late. Also feeling awful all the time.
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