[bizi]

(((((HUGS))))))
bizi

[OhKay]

I'm sure that he had my number. Not exactly sure why he chose to call Corey instead of me. It's not really a matter of WHO he decided to call, but that he thought he needed to call at all.

The radiologist report you receive from your doctor is the final report, but MRIs, CAT scans, and some X-Rays are usually read more than once....

First, a radiologist takes a cursory check to make sure that there is no immediate risk to the patient's health right after they have the test. If there is a potential medical emergency, the patient will not be able to go home, or will be called back to the hospital.

Then there is a "wet read" within about 24 hours after the test when a radiologist takes a second look, and will give more detailed findings, some of which may be more serious.... my nephrologist most likely called after he got that "wet read."
My best guess is that one of the calcium deposits in one of my kidneys is in a really bad place. That's the best I can come up with.

My nephrologist will get the full radiologist's report on Monday- the same day I should be able to see it as well. I can't talk to him until after 1pm Monday because that's when his office opens.

It's amazing, but I'm not really thinking about it/talking about this much. That's good because it would only feed the beast. It's better not to dwell on these types of things, especially since I'm in the middle of an episode, but easier since I am experiencing a euphoric type of hypo/mania. I got very racy starting late in the morning yesterday, but I think I am coming down. I took (2) 1/2 doses of Rexulti for 5 nights, and haven't taken it at all for 2. I think d/c'ing it was the right decision.
I may not be consciously thinking about all this kidney s***, but my anxiety has been very high. I'm still consistently at 2mg of Klonopin. Sometimes 2 1/2.


Corey went with me to pick up my glasses and we went out to lunch after... his idea. It was nice to go out for a change. It rarely happens. So I was very happy

I LIKE my glasses. I got transitions lenses and they look awesome when they change in the light. I haven't bought a new pair for several years, and there is a big correction for my astigmatism, so I have to wear them all day for several days to get used to them.

[OhKay]

I feel badly. I should not complain about my medical problems. I am getting good and prompt medical care, and others have much bigger worries than me.

[mymorgy]

that is great about your glasses. seek comfort from us. you give so much comfort and and you have so many things to deal with!
love
bobby

[bizi]

Originally Posted by OhKay

I feel badly. I should not complain about my medical problems. I am getting good and prompt medical care, and others have much bigger worries than me.

OMG! Don't feel badly!
You have so much on your plate...it isn't funny.
I am glad that you got to eat out for lunch.
and bobby is right you provide so much support to us.
We are like family in some ways.
We have been thru a lot together over the years.
I am thankful for you and for these forums.
love and hugs bizi

[Dmom3005]

Kay

Your problems are just as important as anyone else in here.
We all love you. Keep telling us what you need to.

Donna

[Mari]

Hi, Kay,

Enjoy the glasses.

What you call transitions -- are these the ones that adjust to light? That's cool.
'Glad that you like them.



M

[OhKay]

Yes, they adjust to the light. It IS pretty cool. They are less expensive to buy, and more convenient for me to have, than the regular ones and sunglasses. Prescription sunglasses can be very expensive. I know people buy glasses online, but I am extremely picky and a very difficult fit so I won't do it.

I've come down to a safe and much more comfortable place, but I'm still a little hypo and euphoric. It's really been helping me deal with the stress I'm under. I hope it holds up through whatever it is I find out today... and going forward.

I'm having my nails done at 9am. It should be a nice distraction for a little while, and I enjoy having them done.

I hope when I get home I can view the radiologist's report online...

I will let you guys know what the nephrologist says after I speak to him.

[bizi]

I am glad that you are in a safer place.
Do let us know when You speak to him.
(((((HUGS))))
bizi
glad that you got your glasses.

[OhKay]

I called and left two messages yesterday, but my doctor never called me back. I got a "no caller ID" call on my cell phone while I was in the bathroom at about 7:45pm, but whoever it was never left a message. Maybe it was him. IDK.

I did get to view the radiologist's report... wow, am I a f***ing mess!!! I feel both better and worse after reading it, but I'm not worried about any kind of medical emergency now.

1) I *think* what the nephrologist was worried about pertains to my lower GI system. This is the 2nd CT scan I have had that indicates I probably have inflammatory bowel disease (different than IBS). The radiologist couldn't rule out an infection, so my doctor probably called in case I had diverticulitis again and wanted to make sure I didn't hesitate in getting to the ER for treatment if that was the case. He should have just called me and asked about my history.

2) I have "scattered lymph nodes" in my abdomen, but they are not large enough to be significant in their own right.

3) I have "scattered degenerative changes of the visualized skeleton but no obvious fractures," which means that I have arthritis and/or osteoporosis in a lot of places, but no broken bones.

4) I have calcium deposits in my blood vessels. The radiologist was non-specific about where. It could be old-fashioned heart disease, but it's probably related to the calcium deposits that are in my kidneys, too.

5) Not much was said at all about my kidneys. They are "normal in appearance," but I know I have medullary nephrocalcinosis- calcium deposits in my kidneys (not the same as kidney stones). Apparently they didn't show up on the CT scan. I don't have kidney stones.

The radiologist noted that the exam was limited tho because no contrast was used. I hope they don't expect me to go through it again with the contrast.


From the results of the blood and urine tests, it looks like I will probably have to see an endocrinologist because I have a problem with my parathyroid glands. After reading the radiology report, I don't know if I will have to see a cardiologist and/or rheumatologist now, too

At some point, I'm going to have to call my gastro so he can take a look at the CT scan, but there's no f***ing way I'm opening that can of worms right now.


My appointment with the nephrologist is at 3pm. It will be a long day of waiting again... I still don't know what's causing all of this.