[mymorgy]

you have so much on your plate.
love
bobby

[bizi]

I will wait with you .....
(((((HUGS))))))
bizi

[Dmom3005]

Sending hugs.

Will be looking for the answers.

Donna

[Mari]

Originally Posted by OhKay

At some point, I'm going to have to call my gastro so he can take a look at the CT scan, but there's no f***ing way I'm opening that can of worms right now.


My appointment with the nephrologist is at 3pm. It will be a long day of waiting again... I still don't know what's causing all of this.

Kay, I read your post and I mostly understand it.

'Deeply sorry that I cannot respond to the issues.


I send you strength to for the work you do every day to take care of yourself
and your husband.

I admire your focus.

Know that all of us are with you.


M

[OhKay]

I was right about why the doctor called my husband on Saturday.

I still have no answers because the CAT scan failed to show the calcium deposits that showed up on the ultrasound. My nephrologist said he would be at the hospital on Thursday and would consult with the radiologists.
Why didn't he just order the contrast!!!

I asked about the calcium deposits in my vascular system, and he said he hadn't noticed that in the (short) radiologist's report. He said it was unusual for a 37 yo woman, and said he will ask the radiologists about that, too.
When I asked him what I should do about it, he told me to stop smoking
When I find out what the radiologists have to say about it, I'll consult my PCP about it.

He said all my recent blood work and pee tests were okay. He isn't concerned about my parathyroid. He said my parathyroid hormone was so low because my "vitamins are so good." It is well outside the normal range... I forgot to ask a question I should have...

Anyway, I am waiting again.
I will call his office Monday if I don't hear from him before then.


I have come down a lot, but I am still hypo. My biggest issue is psycho-motor agitation. It's better than it was before, but I still just can't sit still. I saw my pdoc this morning and she's having me double my 300mg dose of gabapentin for 3 days before going down to 400mg until I see her in 2 weeks. I think 400mg will be too much for that long tho.

I saw her at 7:30 and I have my Tysabri (MS med) infusion at 10am, which has left me with a little over an hour here at home.

I'm hoping I don't get that super-slow nurse again :roll eyes:
I don't want to get stuck there all day.

It would be nice if I could take a nap when I get home, but there's little chance of that.

[bizi]

How long did the infusion take?
Did you get a nap in?
glad that your mood is better.
((((((HUGS)))))
bizi

[OhKay]

It was a S*** SHOW at the hospital when I got there to get my Tysabri. They were running really behind, mainly because of pharmacy issues, and all the poor nurses were so busy...
But I STILL got out of there in the 2 1/2 hours it's been taking lately because I didn't have the slow nurse, who wouldn't have been able to handle the pressure. I told the other nurses about my experiences with her, and they said she was hard to work with because she is really ****ing lazy.

I took the double dose of gabapentin last night, and I expected to sleep in and wake up at least a little sedated, but I woke up alert at 6am. I slept through the night tho, which is rare. If I had any spasticity it didn't disturb me.
I am still high and can't sit still this morning.
I wish I was still euphoric... that was wonderful! But at least I'm not dysphoric.

The RN at my nephrologist's office called me yesterday to schedule me for a 1 month follow-up appointment, so I guess that means I shouldn't expect a phone call regarding his consultations with the radiologists.
There's nothing I can do to get rid of the calcium deposits, so I think my goal will be to just TRY to forget about this whole ordeal until I hear from him again, or see him next month. I surrender.

Today would have been the best day to do laundry because it will be a high of 50 degrees out vs. 33 tomorrow, but I just need a day to myself. I was hoping I would be calmer and able to sit still tho. I have a couple of errands to run, so at least I won't be trapped in the apartment all day, which would be misery.

[bizi]

Thank you for the update kay.
YOu could still call on monday, he did say he was going to get more info today, maybe he will still call you today, here's hoping.
maybe you just want to not worry about it till then, you have been worried about things for such a long time. I feel sorry for your waiting and agony.
I hope you get your errands done and that you can get a good nap into today. Your body needs to recover from all of this mental anguish.
(((((HUGS and love )))))))
bizi

[OhKay]

I don't know if one more double (600mg) dose of gabapentin is going to bring me down enough to go down to 400mg. I'm still dealing with a lot of psycho-motor agitation, and I'm still really racy, etc. I slept, but not through the night last night, and I woke up alert again this morning. Too bad it wasn't sedating… I could use some sedation.

I feel like I'm getting a little vacation because I don't have any medical-related obligations until the 20th when I have to have my blood drawn again because of my persistent high lymphocyte count, and I don't have an appointment until the 22nd when I see my pdoc

The cat room is a mess and I've been VERY bothered by it, but so far I've been able to restrain myself from doing anything about it during this episode because I'm really afraid of hurting myself again.
But, this morning I'm like (this) close to messing around in there even though Corey said he will help me this weekend. He's not exactly reliable, but I need to believe he's going to help me, so I'll wait. I'm going to be home all day, so I'm going to have to find other ways to distract myself.

My new iPhone is coming today, so it's good I'll be home to sign for it. I don't remember when FedEx comes, so I will take an early shower so I don't miss them.

It would be great if I heard something from the nephrologist today, or if his RN calls to tell me he wants to order more definitive testing (i.e./ repeat ultrasound or CAT scan with contrast this time), but I don't expect it.

I haven't heard anything back about my medical marijuana license application yet. I have been checking my email tho…

[Mari]

Kay,

'Would be nice to teach the cats how to keep up with their room somehow.
Maybe in the future someone will develop more self-cleaning devices.

Let us know about your new phone.

M